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ptich

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write, while I agree that "Kris-Concrete" has nothing even close to ALS, I don't understand your statement that head trauma cannot cause (or I would rather say trigger) ALS. Quite a few diagnoseded folks on this forum mentioned that their ALS symptoms started after they hit their head. It looks like head injury may trigger ALS, or speed up its progression.

Of course not every head injury (or not even one of a hundred) would trigger ALS, so your argument that "how many people would have ALS if there was indeed a correlation" does not work. But reverse correlation may be true - apparently many ALS cases had most of the symptoms manifestating after a head injury.
 

MtPockets

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Kris,
Get an appointment with a professional, like in Doctor.
Some of the people on here have spent years of testing and professional evaluation, before even considering ALS. Yet you pick it like out of a hat.
DO you want ALS?
GO to a Doctor, please...................
 
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wright

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Ptich

The reason I say that there is no correlation between ALS and head trauma . . . IS BECAUSE THERE ISN'T!

Just because a few people on here noticed ALS symptoms after hitting their head is purely anectodal at best. ALS is so insidious that those symptoms were more than likely present well before their head trama. Stop trying to be a scientist and saying things that have absolutely no merit or scientific backing.

You already pissed me off about a week ago by your stupid statement that you think you have ALS (maybe you didn't read my reply to you), even though you don't have a shred of evidence you do, including 2 clean EMG's and an all clear by two different neuro's . . . but I guess your vast medical knowledge trumps those of your neuro's. Stop inducing panic on this forum by your selfish, ignorant statements and stop being disrespectful to those people on here that actually do have MND.

P.S. Some of you might be thinking that my response to ptich was a little over the top, but he and I have a history (mostly through PM's) and I have simply had enough of his rhetoric.


Kris-concrete

All of the things I mentioned can cause muscle atrophy. Your muscle atrophy could also be due to muscle damage and has nothing to do with a nerve problem. What comic book did you read that indicated the only way you can have muscle atrophy is from MND?
 

awieleba

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Kris~

I understand your concerns. You need to go to a neuro to have an mri on your c spine, well whole spine and brain. Being a boxer, there are many things that could cause this. You have to start there before you get yourself worked up. You are putting the cart before the horse. You have not even had anything ruled out, so to get to the bottom of your troubles, you cant rely on this site. You MUST get to a neuro.
please take care and think of another profession! Sorry, I am just a mom over here and the thought of one of my sons getting punched for a living makes me nervous! (well, I guess they do puch each other alot!)

take care!

april
 

lostinlouisville

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Kris

Write is right again, there are so many people on here that have atrophy and no ALS, me included. I never thought the only reason I have atrophy was I had to have ALS, but then again, I have went to many Dr's. over the last year and spent a lot of money and actually listened to what most of them have to say and am getting closer to a DX. but not ALS. My 23 year old son has one whole side of his back that is atrophied because of getting ran over by a car, it sounds like your's would be more from an injury too, you know letting someone slug the h*** out of you on a regular basis. Take care of yourself by going to the DR. and listening. How many times do us mothers have to tell you kids.lol
 

Al

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I'll just jump in with my 2 cents. I've had 2 concussions and don't think it caused my ALS. There is no scientific proof that it does. You can say it does cause it but that don't make it true. We try to keep the forum honest and informative. Let's not be making wild claims and assumptions.
And you guys try to play nice!

AL.
 

Kris-Concrete

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sorry to get your folks all worked up!
I understand your frustration.
I need to take into consideration that there are a multiple amount of things that could possibly trigger this - but I mean, my hand is so weak, stiff, etc. my right elbow is so dipped, it's scaring me - along with fasciculations? I mean, ugh... it's almost painfully obvious in my mind (which amounts to being crazy in the real world haha).
but just one question - how does this point away from als? i can understand people saying hey it could be other things besides - but to say absolutely, unequivacably, etc.
A little too ardent, no?

my right arm is getting weaker, stiffer... yet I don't ever get the fasciculation in it unless i contract my elbow or if I'm using it in a certain way... yet when i twist my elbow back, i can see some fasciculation but i can't feel it, 'tis weird?
even typing is hard for my right fingers - they just feel so stiff and weak - could this be arthritis?
thanks!
 

Al

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We're not doctors. GO TO ONE! The things you describe do not sound like ALS. You think you've got atrophy? You might. My friend has spinal stenosis and he has atrophy. See a doctor.

AL.
 

Kris-Concrete

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Al i understand. I'm sorry for causing this big hoopla. I'm just so scared. Out of my wits. But hey this is LIFE. If it is ALS, god bless.
So many people die of things they cannot control. I'm NOT special. hehe.
I think that you, and BethU, are two of the bravest people I've encountered. You actually take the time out to give suggestions when you yourselves are not physically well. ANd you're honest people. I honestly think you are a special!
and yes, a doc it is. hopefully i'll come back with good news.
truly lots of love,

Kris aka krissy aka concrete.
 

ptich

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write, I am not a scientist. If you're a one, then you should be aware that:

1. Ranting is not a scientific method

2. Before arguing, scientists read their opponents' comments carefully

Anyway, if head injuries are not known to trigger ALS symptoms, what is the science opinon on what is trigerring them (or even causing ALS) ? Is there anything, like stress for example, that is accepted by science as having impact on ALS progression ?

I am, actually, very curious about the last one, and I think everybody here would be, too: what is scientifically known about effect of stress on the ALS progression, what kind of studies were conducted, etc.
 

Al

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My 2 cents again. My Neuro believes a genetic preedisposition and environmental toxins are going to be found to be a large part of the cause. We all know stress kills. Heart and stroke guys have done studies on it but I don't think ALS was part of their equation. I don't know if stress affects ALS but would bet it does. Just look at how much everybodys twitches and symptoms multiply as soon as they land here looking for a diagnosis. Now some of them guys are stressed. Makes them crazy. More stressed, more symptoms. Makes me wonder. Not scientific but a fairly accurate observation.

AL.
 

hopingforcure

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Hi guys I was thinking that we could put a neurological disorder on the list's of things you could look at. I know that Ali has Parkinson's disease, and while we cannot help you with a diagnosed. we can recommend that you see a doctor, ALS will be at the end of a long list of what it could be, so keep your chin up...
 

wright

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Ptich

I read your comments very carefully and what I take exception to is speculation without any scientific backing . . . and it's obvious you're speculating because you are now asking me about what the scientific community thinks. If your comments had any scientific merit, you would have quoted actual peer-reviewed studies.

Furthermore, what really gets under my skin is when people come on this forum and tell everyone they have ALS when they haven't been diagnosed (and you absolutely stated that in a previous post, even though you have been flat-out told you don't have ALS). People that are on this forum then compare symptoms and immediately think they have it too. It is also very disrespectful to those that actually have ALS. In a PM to me some time ago, you felt it was unwise to make such statements and then you go and do it again.

As for your question: no one knows what causes ALS. If anyone did, they'd be on their way to a cure or at least a treatment. I have my opinions and theories (as do many others) but I'm not going to share them because there is no consensus at all and no definitive evidence for anything and I don't want anything I say to cause any undue fear.

Regarding stress: stress isn't good when it comes to anything, so minimizing it is certainly always beneficial.

Listen, I don't come on here to start fights (even though I seem to be a part of many of them) but I will stand-up for what I feel is right. I'm also someone that doesn't hold a grudge. I believe you have a thirst for knowledge and I think that is admirable. What you can't fall prey to though, is making baseless conclusions with less than complete information. I truly wish you peace.


Kris-Concrete

Even if we were ALS-specialists on here, we couldn't diagnose you over the internet. The more I read your posts, the more I'm convinced that you have absolutely no idea what you're reading. Just go see a physician.
 

ptich

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> stress isn't good when it comes to anything,
> so minimizing it is certainly always beneficial.

Isn't the same true for a head injury ? :D

What I am trying to say is that there is really not that much proven scientific knowledge here, and one have to rely on anecdotal evidence to get some help. For example, science does not list water as a legitimate treatment for fasciculations, but in reality it helps in many cases. And sometimes food with more fat helps way more than Rilutek does (there was a reference on the forum to a neuro saying that). And statins seem to be bad for ALS - is there a scientific proof for that ? Nope. But many neuros do recommend PALS to stop statins. It is all based on anecdotal evidence rather than on scientifically conducted trials.
 

BethU

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Sorry, but there is good science for the statin connection. It was a reputable Canadian study. Al posted a link to the study results on this forum a while back. You can do a search for it.

The study showed that statins make ALS symptoms worse. I'm not sure if it was also determined that they speed up progression or not. My neuro told me about the study when it was published in a neurological journal, and I discussed the study with my cardiologist, and we agreed ... the ALS risk was greater than the cardio benefits.

Don't know your source for saying it is all anecdotal evidence, but that's simply not true.
 
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