bellard
Member
- Joined
- Feb 28, 2007
- Messages
- 18
- Reason
- Loved one DX
- Country
- US
- State
- Arkansas
- City
- Fayetteville
Hello,
I have posted a few questions here for all of you to help me help Mom with her ALS. For a refresher, mom is 74, was diagnosed in February with Upper Bulbar ALS, which she has had symptoms of for 1+ years. Mom also lives 600 miles away with 1 daughter, and a son close by.
Mom can not speak where anyone can understand more than 10-15% of what she says, but she is adament about not even looking at devices, and insists on talking. I am grateful that she does communicate with the out of state family, via computer.
We go back to clinic, for our first check up, this month, and today, she said, that we should go out to eat, instead of attending the ALS social the night before.
It seems that Mom is avoiding all options of learning how to live with and deal with ALS. Or is it me? I would like mom to enjoy her life with quality when available, but if she shuts down, and closes her mind, she will not have quality, I feel?
Any tips on encouraging her to stay open minded, or me to quit pushing when I should are appreciated.
Thanks
I have posted a few questions here for all of you to help me help Mom with her ALS. For a refresher, mom is 74, was diagnosed in February with Upper Bulbar ALS, which she has had symptoms of for 1+ years. Mom also lives 600 miles away with 1 daughter, and a son close by.
Mom can not speak where anyone can understand more than 10-15% of what she says, but she is adament about not even looking at devices, and insists on talking. I am grateful that she does communicate with the out of state family, via computer.
We go back to clinic, for our first check up, this month, and today, she said, that we should go out to eat, instead of attending the ALS social the night before.
It seems that Mom is avoiding all options of learning how to live with and deal with ALS. Or is it me? I would like mom to enjoy her life with quality when available, but if she shuts down, and closes her mind, she will not have quality, I feel?
Any tips on encouraging her to stay open minded, or me to quit pushing when I should are appreciated.
Thanks