Dianee
New member
- Joined
- Jun 17, 2017
- Messages
- 9
- Reason
- Lost a loved one
- Diagnosis
- 04/2017
- Country
- US
- State
- PA
- City
- Kennet Square
I was here a few years ago when my brother in law was diagnosed with ALS and passed away about five months later.
My brother in law had leg vein surgery a couple of times prior to ALS symptoms.
His first ALS symptom was “Drop Foot” in one leg, and he quickly developed weakness in both legs and required a walker…
Within a few weeks he was admitted to an ICU at hospital as his breathing was becoming difficult…He was in ICU
for a month and was finally diagnosed with ALS….While he was in ICU, a nurse told my sister (his wife) that her mother was also diagnosed
with ALS sometime after leg vein surgery…
Of course the leg vein surgery was assumed by me to have been a coincidence until a couple of weeks ago when a friend, who had several leg vein surgeries,
including one recently, was diagnosed with drop foot. After it progressed to severe weakness in one leg, and requiring a walker, she saw a neurologist, who told her she has 90% loss of muscle control in one leg and 50% in the other leg. She was told by this doctor that he couldn’t do anything for her
and she would get worse. Nothing was mentioned about ALS or any similar disease and the only advice she got was to get a second opinion.
She will see another neurologist this week, and I dread what she may be told. Neither I nor my sister have mentioned ALS to my friend, but we
both got the same horrible feeling after hearing her story.
Has anyone else been involved with or heard about ALS developing after one or more leg vein surgeries?
It doesn’t seem to be logical to me that they could be connected, but ALS is a disease of unknowns, and I suppose anything is possible!
My brother in law had leg vein surgery a couple of times prior to ALS symptoms.
His first ALS symptom was “Drop Foot” in one leg, and he quickly developed weakness in both legs and required a walker…
Within a few weeks he was admitted to an ICU at hospital as his breathing was becoming difficult…He was in ICU
for a month and was finally diagnosed with ALS….While he was in ICU, a nurse told my sister (his wife) that her mother was also diagnosed
with ALS sometime after leg vein surgery…
Of course the leg vein surgery was assumed by me to have been a coincidence until a couple of weeks ago when a friend, who had several leg vein surgeries,
including one recently, was diagnosed with drop foot. After it progressed to severe weakness in one leg, and requiring a walker, she saw a neurologist, who told her she has 90% loss of muscle control in one leg and 50% in the other leg. She was told by this doctor that he couldn’t do anything for her
and she would get worse. Nothing was mentioned about ALS or any similar disease and the only advice she got was to get a second opinion.
She will see another neurologist this week, and I dread what she may be told. Neither I nor my sister have mentioned ALS to my friend, but we
both got the same horrible feeling after hearing her story.
Has anyone else been involved with or heard about ALS developing after one or more leg vein surgeries?
It doesn’t seem to be logical to me that they could be connected, but ALS is a disease of unknowns, and I suppose anything is possible!