Benji
New member
- Joined
- Jul 21, 2012
- Messages
- 4
- Reason
- Loved one DX
- Country
- UK
- State
- East Sussex
- City
- Brighton
Hi everyone,
This is my first time on here - but I have been reading for a while and am really appreciative of the input from everyone on here. I would welcome any thoughts on the below...
About two years ago my grandfather passed away from Bulbar onset ALS, and although it probably has no relevance to my issues - it is something that has kind of underpinned all my concerns.
I had recently been in hospital, admitted for feeling of tingling sensations in my hands, calves and feet. I had CT, MRI and Lumbar Puncture all of which were clear. I was relieved as this discounted MS etc. At this point I must add that ALS wasn't really in my mind.
However, since leaving hospital about 2 months ago, I started having a shaking or twitching sensation in my right hand thumb, ring and pinky finger - though this is intermetent and not constant. I thought/think my hand and forearm/inner elbow feel a weak and ache constantly, along with a real stiffness straigtening out my hand. That lead me to look up a few strength tests, all of which I can do and have no fine motor issues like shoe laces, buttons etc.
I then began to get body wide twitches, predominantly in my left arm, chest and left calf.
I have only really started to become more concerned over the past 5/6 weeks as I started to feel a real weakness just above my left knee (front of leg), almost like a dull ache and felt like it was making me limp. This has since progressed to a sharp, cramp-like pain which again comes and goes. I must add that I can still do all the lower extremity strength tests and run, play football etc.
Having read most of the posts on here (which probably hasn't helped - as I may well be putting 2 and 2 together), I can see that some of my symptoms mirror ALS, but the order of things are a bit different to other people. I originally thought that the weakness and cramping must come before twitches, but there seem to be contradictory information to this - and that is where I am most concerned.
I do have a lot of lower and upper left back pain also. I feel a lot better for getting all of that off my chest, it has practically been eating me alive.
Any thoughts anyone has on this will be greatly appreciated, I really am in awe of everyone here and hope you don't mind me posting this - I am sure you get lots of concerned people here daily.
Thank you in advance.
This is my first time on here - but I have been reading for a while and am really appreciative of the input from everyone on here. I would welcome any thoughts on the below...
About two years ago my grandfather passed away from Bulbar onset ALS, and although it probably has no relevance to my issues - it is something that has kind of underpinned all my concerns.
I had recently been in hospital, admitted for feeling of tingling sensations in my hands, calves and feet. I had CT, MRI and Lumbar Puncture all of which were clear. I was relieved as this discounted MS etc. At this point I must add that ALS wasn't really in my mind.
However, since leaving hospital about 2 months ago, I started having a shaking or twitching sensation in my right hand thumb, ring and pinky finger - though this is intermetent and not constant. I thought/think my hand and forearm/inner elbow feel a weak and ache constantly, along with a real stiffness straigtening out my hand. That lead me to look up a few strength tests, all of which I can do and have no fine motor issues like shoe laces, buttons etc.
I then began to get body wide twitches, predominantly in my left arm, chest and left calf.
I have only really started to become more concerned over the past 5/6 weeks as I started to feel a real weakness just above my left knee (front of leg), almost like a dull ache and felt like it was making me limp. This has since progressed to a sharp, cramp-like pain which again comes and goes. I must add that I can still do all the lower extremity strength tests and run, play football etc.
Having read most of the posts on here (which probably hasn't helped - as I may well be putting 2 and 2 together), I can see that some of my symptoms mirror ALS, but the order of things are a bit different to other people. I originally thought that the weakness and cramping must come before twitches, but there seem to be contradictory information to this - and that is where I am most concerned.
I do have a lot of lower and upper left back pain also. I feel a lot better for getting all of that off my chest, it has practically been eating me alive.
Any thoughts anyone has on this will be greatly appreciated, I really am in awe of everyone here and hope you don't mind me posting this - I am sure you get lots of concerned people here daily.
Thank you in advance.