chaoticjane
New member
- Joined
- Jan 15, 2023
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- IN
- City
- Indianapolis
Hello, thank you for taking the time to read this! It means a lot! I’m a 23 F that has Ehler Danlos Syndrome and I’m scared about what’s going on.
December of 2022 I started getting horrible pain from my elbows going down into my arms followed with fatigue. One day I woke up and could turn my head without pain going down my neck, to my scapula, into my left arm and causing twitching in my left thumb. The twitching has continue and as of last week I noticed thenar atrophy.
January 2023, I had my EMG done to test for cubital tunnel and a pinched nerve. Doctor said EMG looks good and I brought up how I’ve been having fasciculations. He said “everyone has them”. I’ve had them all my life but never as consistent as my thumb. I still haven’t gotten my report back from him despite it being on Jan 3rd. I have still been having twitching in my thenar muscle followed with atrophy but no weakness. My thumb feels tense/stiff. I still have full ROM. I brought this up to my sports medicine doctor and he said it sounds like I have a rotor cuff issue. He looked at my thumb and disregarded it.
Right now I’m so scared that my signs are too early to catch on an EMG. I’m very anxious and I want to know what you all think and to get opinions. Thank you so much!
December of 2022 I started getting horrible pain from my elbows going down into my arms followed with fatigue. One day I woke up and could turn my head without pain going down my neck, to my scapula, into my left arm and causing twitching in my left thumb. The twitching has continue and as of last week I noticed thenar atrophy.
January 2023, I had my EMG done to test for cubital tunnel and a pinched nerve. Doctor said EMG looks good and I brought up how I’ve been having fasciculations. He said “everyone has them”. I’ve had them all my life but never as consistent as my thumb. I still haven’t gotten my report back from him despite it being on Jan 3rd. I have still been having twitching in my thenar muscle followed with atrophy but no weakness. My thumb feels tense/stiff. I still have full ROM. I brought this up to my sports medicine doctor and he said it sounds like I have a rotor cuff issue. He looked at my thumb and disregarded it.
Right now I’m so scared that my signs are too early to catch on an EMG. I’m very anxious and I want to know what you all think and to get opinions. Thank you so much!