lsasse15
Member
- Joined
- Feb 21, 2019
- Messages
- 11
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
- City
- Pittsburgh
First off I’d like to say thank you for the recent acceptance into the community, I have so much respect for all of you who are fighting this terrible disease.
I want to start out by saying that I am a 26 year old male who has been healthy relatively my entire life.
Lately I have been having severe anxiety over a few symptoms that have manifested themselves over the past month. It all started after the super bowl in early February I woke up one night and felt awful with severe stomach and back pain, this persisted for about a week until I was admitted to the ER about 2 weeks ago with severe pain that woke me up out of a dead sleep. The ER performed CT scans and blood work to check for gastrointestinal issues in my colon or upper tract. Everything came back negative after a colonoscopy and scan of my mid section.
I was fine until about a week and a half ago I noticed this cramping in the back of my right knee, it was subtle at first but over the past week it has gotten worse and now it is getting more difficult to walk on my right leg, my GP noted that gallbladder issues can cause back and it band pain in the leg so I went to get it looked at, everything once again came back fine. I was still having some discomfort and cramping in the knee followed by twitching on that side of my leg as well as twitching in my other leg and lower back, a few days ago I decided to visit a neurologist due to feeling worse with each day, the neurologist said my reflexes were brisk but everything else was normal during the ititial physical test after the appointment he ordered a few blood tests and an EMG scheduled for next Thursday, I have always had fairly high anxiety over any health issues since I’ve been healthy for the most part.
What is concerning me is that I have not had any sort of appetite for about 2 or so weeks and I have lost weight as a result, over the last 2 weeks I have had extreme fatigue that has kept me tired at work and made me head for early bedtimes. I have not slept well at night Partially due to shortness of breath that I’ve noticed when lying down without my head raised, I have also felt out of breath walking up stairs. I have had excessive twitching for the last week in both legs as well as part of my mid-section and have had cramping in my right left near the knee and now it is in my left foot as well.
I know I am most likely thinking way too much into this but my neurologist mentioned I could have Guillain-Barré syndrome due to my recent bout with stomach issues. Would the symptoms I’ve been having lately match those of what you would typically see with Guillain-Barre? I continue to feel weaker each day particularly in my extremities, my doctor said to visit the ER if I notice my reflexes beginning to slip however they seem to be fine. If anyone on here has had an experience with Guillain-Barré syndrome I would like to hear about what their experience was like when they first were diagnosed with it, I don’t want to be a hypochondriac and admit myself to a hospital for something that is unfounded at the moment but with the anxiety I have over my health I would appreciate reassurance from the community.
Thank you all for your time
I want to start out by saying that I am a 26 year old male who has been healthy relatively my entire life.
Lately I have been having severe anxiety over a few symptoms that have manifested themselves over the past month. It all started after the super bowl in early February I woke up one night and felt awful with severe stomach and back pain, this persisted for about a week until I was admitted to the ER about 2 weeks ago with severe pain that woke me up out of a dead sleep. The ER performed CT scans and blood work to check for gastrointestinal issues in my colon or upper tract. Everything came back negative after a colonoscopy and scan of my mid section.
I was fine until about a week and a half ago I noticed this cramping in the back of my right knee, it was subtle at first but over the past week it has gotten worse and now it is getting more difficult to walk on my right leg, my GP noted that gallbladder issues can cause back and it band pain in the leg so I went to get it looked at, everything once again came back fine. I was still having some discomfort and cramping in the knee followed by twitching on that side of my leg as well as twitching in my other leg and lower back, a few days ago I decided to visit a neurologist due to feeling worse with each day, the neurologist said my reflexes were brisk but everything else was normal during the ititial physical test after the appointment he ordered a few blood tests and an EMG scheduled for next Thursday, I have always had fairly high anxiety over any health issues since I’ve been healthy for the most part.
What is concerning me is that I have not had any sort of appetite for about 2 or so weeks and I have lost weight as a result, over the last 2 weeks I have had extreme fatigue that has kept me tired at work and made me head for early bedtimes. I have not slept well at night Partially due to shortness of breath that I’ve noticed when lying down without my head raised, I have also felt out of breath walking up stairs. I have had excessive twitching for the last week in both legs as well as part of my mid-section and have had cramping in my right left near the knee and now it is in my left foot as well.
I know I am most likely thinking way too much into this but my neurologist mentioned I could have Guillain-Barré syndrome due to my recent bout with stomach issues. Would the symptoms I’ve been having lately match those of what you would typically see with Guillain-Barre? I continue to feel weaker each day particularly in my extremities, my doctor said to visit the ER if I notice my reflexes beginning to slip however they seem to be fine. If anyone on here has had an experience with Guillain-Barré syndrome I would like to hear about what their experience was like when they first were diagnosed with it, I don’t want to be a hypochondriac and admit myself to a hospital for something that is unfounded at the moment but with the anxiety I have over my health I would appreciate reassurance from the community.
Thank you all for your time