Antisense

Tedstehr

Distinguished member
Joined
Aug 25, 2017
Messages
174
Reason
PALS
Diagnosis
08/2017
Country
CA
State
BC
I haven’t posted for a while. I miss you all! I heard some very exciting news last night from the head of the ALS research in Vancouver. He told me that patients with FALS have shown incredible response to the antisense Trial. He said that patients have actually improved with the drug. Of course this doesn’t help us sporadic people but is great news for FALS. I hope this is not false hope but I really do trust the source.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,239
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
Hi Ted good to hear from you.

The sod1 antisense has been very hopeful and is enrolling phase 3. The results of the earlier phase were reported very recently and showed dramatic slowing but not improvement. I have heard hints that individuals had improvements and wonder if they had one of the less aggressive variants of sod1.

Antisense is indeed very hopeful and c9 is in early phase 1 trials

Thanks for sharing
 

Vincent

Senior member
Joined
Dec 30, 2013
Messages
895
Reason
PALS
Diagnosis
08/2014
Country
CA
State
ON
This is great news for the entire community. The focus on FALS by researchers is based on the fact it is easier to hit a stationary target. This doesn't necessarily mean it can't have benefit for the rest of us.
Vincent
 
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