Tedstehr
Distinguished member
- Joined
- Aug 25, 2017
- Messages
- 199
- Reason
- PALS
- Diagnosis
- 08/2017
- Country
- CA
- State
- BC
- City
- New Westminster
I haven’t posted for a while. I miss you all! I heard some very exciting news last night from the head of the ALS research in Vancouver. He told me that patients with FALS have shown incredible response to the antisense Trial. He said that patients have actually improved with the drug. Of course this doesn’t help us sporadic people but is great news for FALS. I hope this is not false hope but I really do trust the source.