affected
Guru status reached
- Joined
- Apr 26, 2013
- Messages
- 16,096
- Reason
- Lost a loved one
- Diagnosis
- 05/2013
- Country
- OZ
- State
- AU
- City
- lala land
I believe CALS begin grieving from the day of diagnosis.
It's the same here, once registered with palliative care, death at home is totally dignified and in your full control.
I do remember when it was explained to Chris though he made me interpret his comment to them which was: So she could smother me with a pillow one night and no one would ask any questions? (he was serious, gotta love FTD)
Palliative care gave me brilliant phone support, but no one asked me to keep any record of what meds and how much I gave him when. They just kept supporting me on how to keep him completely comfortable and without any fear.
It's the same here, once registered with palliative care, death at home is totally dignified and in your full control.
I do remember when it was explained to Chris though he made me interpret his comment to them which was: So she could smother me with a pillow one night and no one would ask any questions? (he was serious, gotta love FTD)
Palliative care gave me brilliant phone support, but no one asked me to keep any record of what meds and how much I gave him when. They just kept supporting me on how to keep him completely comfortable and without any fear.