malena
New member
- Joined
- Jun 3, 2008
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 04/2008
- Country
- BE
- State
- Brussels
- City
- Brussels
Hello, I registered months ago but I never posted anything. It seemed to me that it would be like recognising that the illness was there.
I ll explain and see if somebody can share the experience.
My husband, 48, started having fasciculations in November 07, he saw a neurologist and then in April 08, after a series of test, told me about the whole thing.
Acording to the doctor the EMG was abnormal, I can t remeber about the nerve conduction test. He as diagnosed with MND in the initial stage.
We went to another neurologist, in a bigger hospital, an specialist in MND. He repeated the tests, my husband says that that second time they were much more thorough. We were told again that the EMG was not clean but they could not be sure it was ALS.
They have done the other usual tests, except the biopsy.
Nothing has changed since then.
Once thing that bothers me is that at night he has this constant jerks. The doctor said they were not important. Anybody has had a similar experience?
I just want to add that we live in Belgium, in Europe.
Thanks to everybody.
I ll explain and see if somebody can share the experience.
My husband, 48, started having fasciculations in November 07, he saw a neurologist and then in April 08, after a series of test, told me about the whole thing.
Acording to the doctor the EMG was abnormal, I can t remeber about the nerve conduction test. He as diagnosed with MND in the initial stage.
We went to another neurologist, in a bigger hospital, an specialist in MND. He repeated the tests, my husband says that that second time they were much more thorough. We were told again that the EMG was not clean but they could not be sure it was ALS.
They have done the other usual tests, except the biopsy.
Nothing has changed since then.
Once thing that bothers me is that at night he has this constant jerks. The doctor said they were not important. Anybody has had a similar experience?
I just want to add that we live in Belgium, in Europe.
Thanks to everybody.