jimmig
New member
- Joined
- May 20, 2008
- Messages
- 8
- Reason
- PALS
- Diagnosis
- 04/2008
- Country
- ca
- State
- british columbia
- City
- shawnigan lake
Hello pals.
I started reading a book by Eric Edney. Anyone esle? He tells of his own actions to
slow the process of ALS. A radical one, but it's working for him. The book is called
"ERIC IS WINNING". One comment he makes in regard to Muscular Distrophy and the
Jerry Lewis telethons. Millions and millions of dollars have been raised for research for many neurodegenerative deseases like MD,MS, and ALS etc. In 2003 over 60 million dollars was pledged. This has been going on for 50 years with no concrete results.
If in fact a cure was found. It would put alot of people out of work who are receiving these millions of dollars. Maybe some of the money from this network of research
should be redirected to people not able to afford the rediculously priced drugs that will prelong the lives of those of us suffering from ALS and others. I ask why!
continuing my search for answers!AS LONG AS IM ABLE TO SPEW!
jimmig.
I started reading a book by Eric Edney. Anyone esle? He tells of his own actions to
slow the process of ALS. A radical one, but it's working for him. The book is called
"ERIC IS WINNING". One comment he makes in regard to Muscular Distrophy and the
Jerry Lewis telethons. Millions and millions of dollars have been raised for research for many neurodegenerative deseases like MD,MS, and ALS etc. In 2003 over 60 million dollars was pledged. This has been going on for 50 years with no concrete results.
If in fact a cure was found. It would put alot of people out of work who are receiving these millions of dollars. Maybe some of the money from this network of research
should be redirected to people not able to afford the rediculously priced drugs that will prelong the lives of those of us suffering from ALS and others. I ask why!
continuing my search for answers!AS LONG AS IM ABLE TO SPEW!
jimmig.