Another rant

[poet1973]

This damn disease! I was supposed to go to pt this morning however, haven't had abm in week and now I can't stop!!!!
It would be ok if I could go by myself but that ain't happening. My legs and left arm have gotten so weak that I can't get up and down myself. It frustrates me that I can't do for myself. I know I'm not the only one going through this but sometimes it feels that way. When I wake and have these problems it makes me mad at myself because I feel like I have failed because I couldn't go to pt or much less leave the house. Then the grandkids come by and don't understand why Pops can't play with them and that breaks my heart. My wife and family try their hardest to keep me upbeat but sometimes you just get depressed and sullen. I'm not one who gets depressed very easily but here lately it seems that I struggle with it alot. Then when you get in your head and think about what is to come it depresses you. Sorry this post is so long and rambling. Just needed to vent and get this off my chest, I guess
Thanks to all of you for all you do.

 

[lisa g]

Vent as much as you want. All us PALS can relate!

 

[KimT]

I can sure relate. I take a happy pill but, sometimes, it just doesn't cut it.

 

[Tomswife]

Tom used to go out to PT. We had to shift to have PT come to the house. We decided if we were going to go to all the effort of going out (a big deal) thatcit would be for fun, not PT.
You can get an order for home PT and OT. Have the provider put them in sequence so PT n weeks then OT n weeks. We are on medicare so OT and PT are for a limited number of weeks and having them linear helps.
Use your outings for fun.