Don
Member
- Joined
- Dec 24, 2019
- Messages
- 19
- Reason
- PALS
- Diagnosis
- 11/2017
- Country
- US
- State
- MA
- City
- Northbridge
Hello all, last week at my clinic I had a pulmonary test with results, according to my neurologist, indicating very serious weakness. My FEV1 was 1.20 and FVC was 1.23. Laying on my back the numbers were 0.89 and 0.85. In March of 2019 I was 2.49 and 2.17 (FVC and FEV1) so the last year has seen great reduction. I don't mind sharing this, and I was just wondering if anyone else has seen numbers like this and what they possibly mean when it comes to how serious this is. My neurologist had a difficult conversation with me and did not hold back, being as truthful as possible and it was not good news. I thank all of you for your feedback, I enjoy being able to "open up" on this forum.