Buglaw
Active member
- Joined
- Jun 20, 2022
- Messages
- 79
- Reason
- DX MND
- Diagnosis
- 10/2022
- Country
- US
- State
- IL
- City
- Chicago
Hi,
Just came from the EMG. Was verbally told that it was abnormal and consistent with ALS. I will post the results when I get them (likely in the next couple of days). The neuro mentioned that the person who ran my prior emg was a physical rehabilitation doctor and these sorts of tests really need to be done by neuros and thus the prior emg was more or less useless. Neuro reccomended a new second opinion, as she views the first opinion I got as worthless. She stated this isn’t really one of the cases where she has much doubt, though. I have one blood test outstanding and then all the rule outs are done (as noted most of the other mimic tests had already been done as part of prior testing).
I guess my story is looking to be more the exception than the rule. I will point out that literally everyone besides my initial neuro was at least somewhat concerned I had ALS. This included two speech pathologists, an ENT, a psychiatrist, a sleep doctor and neurological resident who were all quite concerned. A second neurologist said she wasn’t that concerned, but still referred me for a review by their ALS clinic. I just got exceedingly unlucky with a neuro who said it was stress and I should try talk therapy and a low dose antidepressant to help me sleep.
Just came from the EMG. Was verbally told that it was abnormal and consistent with ALS. I will post the results when I get them (likely in the next couple of days). The neuro mentioned that the person who ran my prior emg was a physical rehabilitation doctor and these sorts of tests really need to be done by neuros and thus the prior emg was more or less useless. Neuro reccomended a new second opinion, as she views the first opinion I got as worthless. She stated this isn’t really one of the cases where she has much doubt, though. I have one blood test outstanding and then all the rule outs are done (as noted most of the other mimic tests had already been done as part of prior testing).
I guess my story is looking to be more the exception than the rule. I will point out that literally everyone besides my initial neuro was at least somewhat concerned I had ALS. This included two speech pathologists, an ENT, a psychiatrist, a sleep doctor and neurological resident who were all quite concerned. A second neurologist said she wasn’t that concerned, but still referred me for a review by their ALS clinic. I just got exceedingly unlucky with a neuro who said it was stress and I should try talk therapy and a low dose antidepressant to help me sleep.