- Joined
- May 7, 2017
- Messages
- 1,884
- Reason
- Lost a loved one
- Diagnosis
- 05/2017
- Country
- CA
- State
- AB
- City
- CALGARY
Hi all,
This is similar to Samkl's question, but I did not want to hijack the thread. Anyway, today has been a fairly horrible day at the clinic. We were not expecting the news we got, so I'll try to keep my question succinct and not ramble from nerves.
Wayne's FVC registered at 34 today and they won't do the G-tube procedure right now. They want to wait another month and see how good he gets at using his bipap, whatever that means. This is because that's the only way he can get through the surgery, as he'll need his bipap throughout. Has anyone heard of this type of wait and see approach?
His numbers have gone down by 60% in less than a year and I think waiting a month will make his numbers worse. I'm not sure what they mean by "waiting to see how well he uses his bipap". His regular respirologist was not there, so we really did not get the thorough explanation she would have given. I'm sick with emotion after today's clinic.
This is similar to Samkl's question, but I did not want to hijack the thread. Anyway, today has been a fairly horrible day at the clinic. We were not expecting the news we got, so I'll try to keep my question succinct and not ramble from nerves.
Wayne's FVC registered at 34 today and they won't do the G-tube procedure right now. They want to wait another month and see how good he gets at using his bipap, whatever that means. This is because that's the only way he can get through the surgery, as he'll need his bipap throughout. Has anyone heard of this type of wait and see approach?
His numbers have gone down by 60% in less than a year and I think waiting a month will make his numbers worse. I'm not sure what they mean by "waiting to see how well he uses his bipap". His regular respirologist was not there, so we really did not get the thorough explanation she would have given. I'm sick with emotion after today's clinic.