momtoandi
New member
- Joined
- Nov 10, 2006
- Messages
- 4
- Reason
- PALS
- Country
- CA
- State
- New Brunswick
- City
- Miramichi
Some of you may remember my mom, Leah--"Granny" to you all, who passed away with bulbar ALS last February. Our family has been doing well, and in fact mom will be getting a new grandchild any day now. It makes me sad that she will not be able to rock this little fellow every day as she did my first, who is 19 months old. This first Christmas without her will be hard, especially for my Dad, who was so committed to her and cared for her with such devotion.
What is really strange is that another neighbour has been diagnosed. We live in a very small rural community, and a couple of years before Mom a woman about a mile up the road was diagnosed and later passed from bulbar ALS. Then my mom. Now a gentleman about 3 miles down the road has been diagnosed with bulbar ALS as well. His sister was one of mom's best friends, and it has made us both sad and questioning. Our hearts break for them because we know what is ahead of them. It also makes us go hmmmmmmmmmm--......there was also another case a few years ago just a few miles away, so there have been four cases in a very small rural area within a few years. I know there is no answer to why, but it just seems too strange and co-incidental.
P.S. Al--we read the article on you in the Globe and Mail this summer while at the cottage--I said to my Dad that that was "Al from mom's message board" and he was quite excited to think we "knew" you. Thank you for sharing your story and giving ALS a face.
What is really strange is that another neighbour has been diagnosed. We live in a very small rural community, and a couple of years before Mom a woman about a mile up the road was diagnosed and later passed from bulbar ALS. Then my mom. Now a gentleman about 3 miles down the road has been diagnosed with bulbar ALS as well. His sister was one of mom's best friends, and it has made us both sad and questioning. Our hearts break for them because we know what is ahead of them. It also makes us go hmmmmmmmmmm--......there was also another case a few years ago just a few miles away, so there have been four cases in a very small rural area within a few years. I know there is no answer to why, but it just seems too strange and co-incidental.
P.S. Al--we read the article on you in the Globe and Mail this summer while at the cottage--I said to my Dad that that was "Al from mom's message board" and he was quite excited to think we "knew" you. Thank you for sharing your story and giving ALS a face.