Aaronmandevill
Active member
- Joined
- May 7, 2022
- Messages
- 73
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- Other
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- Country
- US
- State
- TX
- City
- San Antonio
Just wanted to share my temporary reversal. I’ve already been in contact with Dr. Bedlack and sent him all the supporting information.
Initially I noticed facial weakness, could not perform seal with lips, spilled water from mouth when drinking. I also noticed cramping in both feet with weakness starting in my left foot. The toes progressed over 2 weeks where they moved only slightly and would not move at all against pressure. I also noticed an increased difficulty in swallowing solid foods and in speaking.
On May 21 I donated blood after reading about iron chelation trials and my ferritin being high (360). Later that afternoon I noticed my speaking went back to being perfectly clear. My swallowing went back to normal. I tested my toes and they had returned to full strength. 9 days later I noticed one toe was beginning to get weak again and swallowing started to feel a bit difficult. On May 31 I donated blood and once again all my symptoms went away, this time with fasciculations all stopping.
Unfortunately combined with curcumin usage my body quickly lost all its iron stores and I became anemic after 4 donations. So now I am back to regular progression leading to my diagnosis this week.
Just wanted to share this in case it ends up helping with research in some way down the line.
Initially I noticed facial weakness, could not perform seal with lips, spilled water from mouth when drinking. I also noticed cramping in both feet with weakness starting in my left foot. The toes progressed over 2 weeks where they moved only slightly and would not move at all against pressure. I also noticed an increased difficulty in swallowing solid foods and in speaking.
On May 21 I donated blood after reading about iron chelation trials and my ferritin being high (360). Later that afternoon I noticed my speaking went back to being perfectly clear. My swallowing went back to normal. I tested my toes and they had returned to full strength. 9 days later I noticed one toe was beginning to get weak again and swallowing started to feel a bit difficult. On May 31 I donated blood and once again all my symptoms went away, this time with fasciculations all stopping.
Unfortunately combined with curcumin usage my body quickly lost all its iron stores and I became anemic after 4 donations. So now I am back to regular progression leading to my diagnosis this week.
Just wanted to share this in case it ends up helping with research in some way down the line.
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