Zaphoon
Extremely helpful member
- Joined
- Aug 2, 2008
- Messages
- 2,857
- Reason
- DX UMND/PLS
- Diagnosis
- 08/2011
- Country
- US
- State
- Missouri
- City
- Springfield
Forgive me forum, its' been many months since my last thread!
I thought I'd give you that have known me in the past an update regarding my well-being. You may remember I had 2 neuros suspect I may have PLS, a 3rd suspected I may have psoriatic arthritis (based on the discovery of inverse psoriasis and identical "o" bands in blood serum and csf) but subsequently rejected by a rheumy that couldn't find any arthritis and a 4th neuro discovered I have a small fiber neuropathy (skin biopsy revealed this).
I feel crappy on a daily basis but who on this forum doesn't? Meds don't help. I've tried baclofen and gabapentin but life goes on and the bills need to be paid. So, I work because I can and I have to.
Muscle tightness and twitches are constant as is muscle fatigue but life goes on and the bills have to be paid and the grandkids are coming tomorrow! (Great, great fun!)
So, PLS was the best guess at the time but probably not correct.
Here's to PZ Laboratories Inc and the days of "The Forum Follies".
I thought I'd give you that have known me in the past an update regarding my well-being. You may remember I had 2 neuros suspect I may have PLS, a 3rd suspected I may have psoriatic arthritis (based on the discovery of inverse psoriasis and identical "o" bands in blood serum and csf) but subsequently rejected by a rheumy that couldn't find any arthritis and a 4th neuro discovered I have a small fiber neuropathy (skin biopsy revealed this).
I feel crappy on a daily basis but who on this forum doesn't? Meds don't help. I've tried baclofen and gabapentin but life goes on and the bills need to be paid. So, I work because I can and I have to.
Muscle tightness and twitches are constant as is muscle fatigue but life goes on and the bills have to be paid and the grandkids are coming tomorrow! (Great, great fun!)
So, PLS was the best guess at the time but probably not correct.
Here's to PZ Laboratories Inc and the days of "The Forum Follies".