Luke
Distinguished member
- Joined
- Apr 3, 2012
- Messages
- 317
- Country
- US
- State
- Unspecified
- City
- Unspecified
Hey folks,
I'll share the latest update on my health and then I think it's time to say goodbye to you all for now. I found this forum because of my anxiety over symptoms, and see so many carbon copies of my first thread here, in the form of other freaked-out Google surfers. I don't think I belong on this community nor should be taking up your time, but for those who were following my updates, here's the latest.
My latest pulm. test showed weakness in the diaphram and intercostal muscles. The numbers were 16% lower than expected sitting up, 20% lower than expected while lying down. These numbers were not the FVC, which was 95%, so I don't know which data was used to decide there was muscle weakness, but that's what I've just been told. Might have been the peak flow measurements. My last modified berrium swallow shoed pooling in the vallecula and some delay in epiglottal response, but these findings as well as the pulm findings I just described have not changed from the same two tests done back in March, which is a great thing. I explained that my most distressing problem of all is that I cannot sleep lying down so have been sleeping propped up on my sofa for the last two months. My neuro-muscular specialist is sending me back to the pulm clinic and she's suggesting bipap to bring me night time relief. I'll gladly try anything that will help me rest soundly! That's all for now. As great as you all are, fingers crossed I won't need to return to this board. If anyone found my presence helpful and wants me to stop by on occasion, let me know. Otherwise I think it's best to stay out of everyone's hair.
Thanks again,
Luke
I'll share the latest update on my health and then I think it's time to say goodbye to you all for now. I found this forum because of my anxiety over symptoms, and see so many carbon copies of my first thread here, in the form of other freaked-out Google surfers. I don't think I belong on this community nor should be taking up your time, but for those who were following my updates, here's the latest.
My latest pulm. test showed weakness in the diaphram and intercostal muscles. The numbers were 16% lower than expected sitting up, 20% lower than expected while lying down. These numbers were not the FVC, which was 95%, so I don't know which data was used to decide there was muscle weakness, but that's what I've just been told. Might have been the peak flow measurements. My last modified berrium swallow shoed pooling in the vallecula and some delay in epiglottal response, but these findings as well as the pulm findings I just described have not changed from the same two tests done back in March, which is a great thing. I explained that my most distressing problem of all is that I cannot sleep lying down so have been sleeping propped up on my sofa for the last two months. My neuro-muscular specialist is sending me back to the pulm clinic and she's suggesting bipap to bring me night time relief. I'll gladly try anything that will help me rest soundly! That's all for now. As great as you all are, fingers crossed I won't need to return to this board. If anyone found my presence helpful and wants me to stop by on occasion, let me know. Otherwise I think it's best to stay out of everyone's hair.
Thanks again,
Luke