- Jun 3, 2008
- Menlo Park
Hi Everyone, my name is Juri. I have been living with ALS for 12 years now, and I had been gone from this site for about ten years, and during that period of time my FRS dropped from 23 to 1. I am on vent 24/7 (with the use of tracheotomy), I use an eye gaze computer for communication, and I take most of my nutritional intake through G-tube. I also have limited mobility, and I use a chin control to drive my wheelchair, and I use a couple of Voyager ceiling lifts to transfer around the house. For dealing with number one (for female), I have a suprapubic catheter tube coming out of my bladder to constantly empty my bladder. In general, I'm very happy and content with my life. I just wanted to introduce myself and say "hello" to everyone.Thanks for having me back in this group.