An intoduction myself

[Strad]

Hi Everyone, my name is Juri. I have been living with ALS for 12 years now, and I had been gone from this site for about ten years, and during that period of time my FRS dropped from 23 to 1. I am on vent 24/7 (with the use of tracheotomy), I use an eye gaze computer for communication, and I take most of my nutritional intake through G-tube. I also have limited mobility, and I use a chin control to drive my wheelchair, and I use a couple of Voyager ceiling lifts to transfer around the house. For dealing with number one (for female), I have a suprapubic catheter tube coming out of my bladder to constantly empty my bladder. In general, I'm very happy and content with my life. I just wanted to introduce myself and say "hello" to everyone.Thanks for having me back in this group.

Juri

 

[KarenNWendyn]

Welcome Juri. Glad you found us and are back. Happy and content is inspiring at your stage.

 

[KimT]

Hi Juri,

I'm glad you found your way back to this group. I suppose just about everyone is new to you.

Wonderful to hear you are happy and content.

 

[Kristina1]

It's great to "meet" you!

 

[JimInVA]

Welcome back, Juri!


My best...


Jim

 

[nes18]

welcome back

 

[Jamesgol]

Hi Juri, Welcome..
I would love to hear more of your story.
Jim

 

[beauty4everyone]

Hi, Juri - welcome. What an interesting and pretty name. B.

 

[blitzc]

Welcome Juri!
May you find joy and wonder in each and everry day.

Cathy

 

[nona]

hi Juri, I'm new here too and researching catheter options. The subrapubic has worked for you? Any problems? I cherish my minimal alone time, and it seems crazy to have someone here just to help me transfer to the toilet every hour or so, often more frequently.