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Strad

New member
Joined
Jun 3, 2008
Messages
1
Reason
PALS
Diagnosis
11/2005
Country
US
State
California
Hi Everyone, my name is Juri. I have been living with ALS for 12 years now, and I had been gone from this site for about ten years, and during that period of time my FRS dropped from 23 to 1. I am on vent 24/7 (with the use of tracheotomy), I use an eye gaze computer for communication, and I take most of my nutritional intake through G-tube. I also have limited mobility, and I use a chin control to drive my wheelchair, and I use a couple of Voyager ceiling lifts to transfer around the house. For dealing with number one (for female), I have a suprapubic catheter tube coming out of my bladder to constantly empty my bladder. In general, I'm very happy and content with my life. I just wanted to introduce myself and say "hello" to everyone.Thanks for having me back in this group.

Juri
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,741
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
Welcome Juri. Glad you found us and are back. Happy and content is inspiring at your stage.
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,477
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
Hi Juri,

I'm glad you found your way back to this group. I suppose just about everyone is new to you.

Wonderful to hear you are happy and content.
 

Kristina1

Senior member
Joined
Jan 26, 2017
Messages
653
Reason
PALS
Diagnosis
03/2017
Country
US
State
MA
It's great to "meet" you!
 

JimInVA

Forum Supporter
Senior member
Joined
May 29, 2014
Messages
785
Reason
CALS
Diagnosis
04/2014
Country
US
State
VA
Welcome back, Juri!


My best...


Jim
 

nes18

New member
Joined
Mar 17, 2019
Messages
2
Reason
Loved one DX
Diagnosis
02/2019
Country
CA
State
ONTARIO
welcome back
 

Jamesgol

Active member
Joined
Dec 21, 2018
Messages
38
Reason
PALS
Diagnosis
12/2018
Country
US
State
OK
Hi Juri, Welcome..
I would love to hear more of your story.
Jim
 

blitzc

Distinguished member
Joined
Apr 20, 2018
Messages
233
Reason
PALS
Diagnosis
01/2018
Country
US
State
OH
Welcome Juri!
May you find joy and wonder in each and everry day.

Cathy
 

nona

Distinguished member
Joined
Oct 1, 2018
Messages
185
Reason
PALS
Diagnosis
02/2015
Country
US
State
NH
hi Juri, I'm new here too and researching catheter options. The subrapubic has worked for you? Any problems? I cherish my minimal alone time, and it seems crazy to have someone here just to help me transfer to the toilet every hour or so, often more frequently.
 
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