- Jul 17, 2007
- Loved one DX
my brother Jimmy (54) was diagnosed with ALS this past July (2007). his was a fast onset and seems to be a fast progression. he lives in st louis, i live in springfield, il. the cold weather affects him very badly, so he is staying with me and sometimes with another sister (also in springfield) for a few months. we seem to be doing more and more for him, and i wonder if we're doing too much? he seems to be so weak anymore, i hate to deny him when he asks me to do things for him. i brush his hair, i help him dress, i cook for him, cut up his food, many times feed him, now i'm even brushing his teeth for him. has he given in to the disease? he seems to sit all day in front of the tv, only getting up to go to the bathroom. he uses a walker in the house, if we take him somewhere we push him in a transport chair (thank god for the ALS & MDA loan closets!). i'm not complaining about doing so much for him, i know that he may not be with us much longer and so i am happy to spend so much time with him. i just worry that i've become an "enabler" and he is losing strength because he's not doing anything. any insight / advice would be greatly appreciated. thank you all!