am I crazy, I just want enjoy what's left

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Yes Marcia, I was diagnosed with ALS in 96. Mine started in my left arm and then my right arm like your sister. I've been in a wheelchair, unable to speak... For over eight years. Last year, I had a feeding tube put in which has made life easier. There is no rhyme or reason to this stupid disease. I never asked my doctors their opinions regarding my progression, if they thought it was fast or slow... I think their opinions can become self fulfilling prophesies for some people. I think they believed I had a fast progression because I did go from walking and talking to not doing so in just over a one year period. But, then the disease just seemed to stop or at least slow down alot. I don't think anyone can predict what will happen. I hope and pray that your sister is giving advice on this forum ten years from now.
 
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