CindyM
Moderator emeritus
- Joined
- Sep 17, 2006
- Messages
- 3,556
- Reason
- Learn about ALS
- Country
- US
- State
- New England
- City
- Anytown
The issues are definitely different when you have under-age dependent kids. LIke you, Liz, I still look fine and function fine. I have told all our grown children that I have symptoms of ALS that are not explained by any other condition but that doesn't mean I will get the disease. I qualify it by saying some folks have these symptoms for years and nothing ever develops.
Then I make plans for the worst, which is when they stop being supportive. They think I should wait until a definite DX before we sell our second home and pay off our loans and credit cards. I say by the time I get a DX I may need to be thinking of modifying the house and getting medical equipment, and what's wrong with going into retirement (If I make it) debt-free?
I am also preparing them all for the day when they will have to pitch in around here. Last night we went to a restaurant and Lee excused himself to go to the men's room. I watched him take a wrong turn coming out and I watched him go all around the restaurant to every room in the restaurant, looking for our table. When he finally found me, back at our table near the men's room, I waited before making my statement.
When I was sure I had his attention, I said calmly, "And you think you are going to push my wheelchair around!":wink:
Then I make plans for the worst, which is when they stop being supportive. They think I should wait until a definite DX before we sell our second home and pay off our loans and credit cards. I say by the time I get a DX I may need to be thinking of modifying the house and getting medical equipment, and what's wrong with going into retirement (If I make it) debt-free?
I am also preparing them all for the day when they will have to pitch in around here. Last night we went to a restaurant and Lee excused himself to go to the men's room. I watched him take a wrong turn coming out and I watched him go all around the restaurant to every room in the restaurant, looking for our table. When he finally found me, back at our table near the men's room, I waited before making my statement.
When I was sure I had his attention, I said calmly, "And you think you are going to push my wheelchair around!":wink: