- Apr 11, 2007
- Learn about ALS
I don't know- maybe I am.. I have watched my peroneal muscle completely atrophy and disappear in the last 2 years, I started having fasics in my legs and they have progressed to EVERY part of my body in the last 8 months, I am only 36 years old and I have had 2 EMG's that strongly suggest ALS (per the Docs) in my thoracic paraspinals and cervical muscles and I have never had a physician say "You DON"T have ALS"' Every 3 month appt has shown some progression. It makes me so angry and jealous there are people hearing from the Dr. that they do not have ALS and still think they do..Maybe I am channeling a little Meg1 but if you have had at least 1 or 2 refutable docs say you don't have ALS- then feel freakin lucky and move on! My last appointment was awful- the Doc could not rule out ALS for me, and I have 2 year old twin boys. Most other diagnosis have been ruled out..I am still waiting and hoping whatever is going on will stop, and it hasn't. Sorry if I am being a total ass-it just makes me so angry! If your Dr cannot find ALS-then please be rest assured you probably don't have it! Again- if I have been a jerk I apologize I was just hoping the Doc would give me better news this time around.