MupstateNY
Distinguished member
- Joined
- Aug 15, 2022
- Messages
- 424
- Reason
- PALS
- Diagnosis
- 11/2022
- Country
- US
- State
- NY
My first EMG was in July, my second in September. I will go back for more testing in a couple weeks. My neurologist (I like him a lot) has so far not been ready to give me an official diagnosis, but he's been very supportive, in terms of ordering PT and speech therapy on the basis of my symptoms and my ongoing evaluation.
I would like to start voice banking before my voice degrades further. I have applied to Team Gleason. There is a form to fill out, in which I'm supposed to put down the reason I want to do voice banking. If I put "ALS," then they want my date of diagnosis. If my neurologist formalizes things next time I see him, then I'll be all set to start the voice banking. But if he feels that it's too soon, then I'd like to ask him for an alternative diagnosis that would open the gateway to the Team Gleason support. My question is, can you helpful folks suggest some possible diagnoses that I could ask him about?
My speech therapist is in agreement that I should start the voice banking, but she doesn't have any specific knowledge about it. I don't live in a major metropolitan area.
Please note that I was not able to add to my previous post in this forum, hence, I had to start fresh. I apologize, I realize that I'm only supposed to have ONE thread.
I would like to start voice banking before my voice degrades further. I have applied to Team Gleason. There is a form to fill out, in which I'm supposed to put down the reason I want to do voice banking. If I put "ALS," then they want my date of diagnosis. If my neurologist formalizes things next time I see him, then I'll be all set to start the voice banking. But if he feels that it's too soon, then I'd like to ask him for an alternative diagnosis that would open the gateway to the Team Gleason support. My question is, can you helpful folks suggest some possible diagnoses that I could ask him about?
My speech therapist is in agreement that I should start the voice banking, but she doesn't have any specific knowledge about it. I don't live in a major metropolitan area.
Please note that I was not able to add to my previous post in this forum, hence, I had to start fresh. I apologize, I realize that I'm only supposed to have ONE thread.