ALSA post

[Ed340hp]

I thought I was the only one critical of some large ALSA Chapters. The Chapter Rep for my county stopped by my house once in my first year, and never since (and I live near the offramp they take for the local VA meetings). I gave up on them after numerous unanswered calls, and switched to the much smaller neighbor county Chapter. The small Chapter responded, and know me by name and face.

 

[Lancasterlanie]

I have had dealings with the Golden West Chapter for the last few months and so far am very happy with the information and support I've received so far. I always get a prompt response when I need something, and guidance to helpful resources.

 

[krnNdug]

In Phoenix, the team is excellent. They did a lot on the fly to make their goal in spite of the pandemic. The % raised is really high in care services which directly impacts pALS & cALS. I have seen much from MNSDND and they are excellent too. I have had many friends move and didn't like the new location's way of doing things. They ended up logging into their original Chapter support group. But even as great as I think they are, there always are some who have a bad experience. O6en the pALS/cALS just want to complain, which is often a part of the helplessness of ALS.

I would recommend being very specific of what you need, issue, desire whatever AND don't do it in a negative manner.

It has been a long time since I visited the ALS Forum and not much has changed. There are many things that still need changing and those changes vary by location and participants.

 

[krnNdug]

One of my friends moved out, a little north of you and he ended up logging into our group and he donated a lot of $ to our Chapter. You would think with all of the movie and TV people donating a lot, then money would be plenty.