- Joined
- Nov 5, 2009
- Messages
- 14,209
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Seattle
Below see some notes from the TDI site from this year's international MND symposium (always worth reading, though not very encouraging) -- does anyone else think these inputs/outputs are questionable?
I'd be interested in the operational definition of "provided services" is, if only half the recipients ventured into an ALSA-branded clinic, which, of course, ALSA doesn't actually operate, during the year. Hopefully, "services" constitutes something beyond getting e-mail or participating in fundraising walks.
Nicole Yarab, Director of Certified Center Programs at the ALS Association, provided a window into their services. According to Yarab, the ALS Association employs 374 people across its 38 chapters in the United States, including 115 staff dedicated to care services. The National Office, where Yarab is located, employs 50 people, 6 of which are devoted to care services. In 2013, the Association provided services to upwards of 15,000 people living with ALS in the USA. About half of those people, 7,328 according to Yarab, visited one of the Association’s 43 “centers of excellence” at least once.
I'd be interested in the operational definition of "provided services" is, if only half the recipients ventured into an ALSA-branded clinic, which, of course, ALSA doesn't actually operate, during the year. Hopefully, "services" constitutes something beyond getting e-mail or participating in fundraising walks.
Nicole Yarab, Director of Certified Center Programs at the ALS Association, provided a window into their services. According to Yarab, the ALS Association employs 374 people across its 38 chapters in the United States, including 115 staff dedicated to care services. The National Office, where Yarab is located, employs 50 people, 6 of which are devoted to care services. In 2013, the Association provided services to upwards of 15,000 people living with ALS in the USA. About half of those people, 7,328 according to Yarab, visited one of the Association’s 43 “centers of excellence” at least once.