Ed340hp
Distinguished member
- Joined
- Jun 28, 2015
- Messages
- 119
- Reason
- PALS
- Diagnosis
- 05/2015
- Country
- US
- State
- California
- City
- Long Beach
Is anyone else registered and participating in the ALS Therapy Development Institute Precision Medicine Program?
I ask because there are open participant spots (280 filled, 20 open).
I don't know if participants will be able to benefit from the neuron cell lines grown from the selected participants DNA and stem cells, and their use in research, but having more potential chances of getting treatments tested on your specific Cell-DNA is better than waiting on neuron specific clinical trials.
https://www.als.net/precision-medicine/
I ask because there are open participant spots (280 filled, 20 open).
I don't know if participants will be able to benefit from the neuron cell lines grown from the selected participants DNA and stem cells, and their use in research, but having more potential chances of getting treatments tested on your specific Cell-DNA is better than waiting on neuron specific clinical trials.
https://www.als.net/precision-medicine/
The Precision Medicine Program launched in August 2014 with the goal of enrolling 20-25 patients. As a result of the Ice Bucket Challenge that summer, the Institute was able to expand enrollment to include 300 patients. The 100th participant enrolled in April 2015 and 200th in September 2015. We expect to complete enrollment of the 300th by June 2016. That cohort will be known as PMP 1.0. In April 2016 we announced PMP 2.0, an extension o the PMP to enrollment up to 450 more people and achieve specific goals for specific types of data. This pie chart depicts the total number of Patients Enrolled (purple), the number of those Scheduled for Enrolled (orange) and the number of Funded Slots Open (blue) for PMP 1.0. As we launch into PMP 2.0 we will update this graph to encapsulate the crucial participation of PMP 2.0 enrollees as well.
*Graphed data last updated Monday, May 01, 2017
Patients Enrolled (280), Scheduled for Enrollment (0), Open Slots (20)