vicmaine
New member
- Joined
- May 22, 2022
- Messages
- 3
- Reason
- PALS
- Diagnosis
- 05/2022
- Country
- US
- State
- ME
- City
- Lewiston
Last Fall, I Started out with a floppy right foot and after many March 2022 neurology visits, EMGs, MRI, as of 5/2/2022, a genetic test came back positive for the dominant ALS gene.
Sincethen, I’ve been on what I call a F**k ALS tour, first with Disney, Camping in Eastport, ME and now in DC to visit a dear friend. Tomorrow, I fly back home to Maine on 5/24.
On 5/26, I see the neurologist who was the one who called me with the genetic outcome. I cussed him out royally when he called with that news! He will tell us about the drugs, the treatment, the trials, and all the rest. I get angry just thinking about that appointment.
Why am I so angry? So Sad? I need to speak to a ALS trained therapist asap, but I don’t know where to look.
To add, I’ve been plant based for 7 years now and am very healthy and trim. I am curious how a plant based diet will impact ALS, if at all.
I just don’t know how long I have and that fills me with anxiety, sadness, and anger.
Any help would be appreciated.
Victoria
Sincethen, I’ve been on what I call a F**k ALS tour, first with Disney, Camping in Eastport, ME and now in DC to visit a dear friend. Tomorrow, I fly back home to Maine on 5/24.
On 5/26, I see the neurologist who was the one who called me with the genetic outcome. I cussed him out royally when he called with that news! He will tell us about the drugs, the treatment, the trials, and all the rest. I get angry just thinking about that appointment.
Why am I so angry? So Sad? I need to speak to a ALS trained therapist asap, but I don’t know where to look.
To add, I’ve been plant based for 7 years now and am very healthy and trim. I am curious how a plant based diet will impact ALS, if at all.
I just don’t know how long I have and that fills me with anxiety, sadness, and anger.
Any help would be appreciated.
Victoria