Hello everyone, I have not posted for a while. As you know I just recieved my diagnosis in september and my wife and I are still in shock and having a hard time accepting this. As the weeks go by there has been changes in my condition that are hard to cope with as well. It was tough to give up my truck which I loved but I know it was a material thing so it was not so bad but giving up my job was very upsetting to me. I was in managment and alot of my employees are still upset and trying to come to grips with my illness. They said I was a great boss and did not deserve to get this illness. I am finding it very difficult to accept and will for a bit I think. My wife is totally devastated and cries every day. She is a very strong woman and has been my rock all along. She continues to fight hard with me everyday. We have been married thirty years coming up. I am only fourty seven years old. We are trying to cope the best way we know how and we work hard at it. She told me last night she is scared. I held her to try and comfort her, she said to me why does this happen? You live your life being good to people and kind you work hard you would give your shirt of your back to help another human being why?
The first symptoms was twitching in my arm and now in both arms. Then my hand is slowly losing motor skills. Cannot do up my shoes, anything with buttons. We changed alot of things to make life easier. Now my arm is getting weaker. My other hand is started to have a bit of a problem. The fatigue is horrible. My wife fights hard to keep me eating well. We love music so we sing often, and watch movies. We are afraid to talk about the future. My wife says let us live one day at a time, one moment at a time and lets not join any support group, lets try and do this on our own.
Christmas is always a wonderful time for us. My wife decorates our house from top to bottom and she did it this year. She told the doctors they should start telling people they are doing good when they are she said they do not say it enough. It is like you are put out on a clothesline and you fend for yourself. We thank you all here for your kindness that you show to each other. Thank god there is a place where we can come to.
hope.
The first symptoms was twitching in my arm and now in both arms. Then my hand is slowly losing motor skills. Cannot do up my shoes, anything with buttons. We changed alot of things to make life easier. Now my arm is getting weaker. My other hand is started to have a bit of a problem. The fatigue is horrible. My wife fights hard to keep me eating well. We love music so we sing often, and watch movies. We are afraid to talk about the future. My wife says let us live one day at a time, one moment at a time and lets not join any support group, lets try and do this on our own.
Christmas is always a wonderful time for us. My wife decorates our house from top to bottom and she did it this year. She told the doctors they should start telling people they are doing good when they are she said they do not say it enough. It is like you are put out on a clothesline and you fend for yourself. We thank you all here for your kindness that you show to each other. Thank god there is a place where we can come to.
hope.
