ALS Symptoms?

[Hilly97]

Hi all,

Just want to commend the admins and active users for creating a safe space for people to communicate via their concerns with ALS. I have worries that my current symptoms could be ALS, although undiagnosed with a gen-med specialist believing I do not have ALS.

My current symptoms include:
- Continuous face cramping on both sides (as if I’m always smiling)
- Thumb stiffness/cramping (both thumbs, this comes and goes)
- Pinky stiffness/cramping (both pinkys this comes and goes)
- Muscle twitches, particularly in my right leg but can be all over my body (is significantly noticeable during sleeping periods)
- Neck stiffness

I haven't noticed the following:
- No weight loss, weight gain in fact
- No strength loss in all parts of body (actively going to the gym
- I don't believe I have atrophy
- haven't lost grip strength in hands.

The symptoms I have experienced have been since October 2022 and believe they are getting worse as time goes on.

I am currently in the process of seeing a neurologist but the waiting periods are quite extensive so thought I would seek advise as it's quite a scary prospect.

Thanks in advance,

 

[lgelb]

I don't think you have ALS, either. Has a post-viral syndrome been ruled out? Has the gen med specialist done any lab work or proposed any other plan besides waiting for the neuro? Has your diet changed from before this began?

Best,
Laurie