- Mar 3, 2009
My husband was recently diagnosed with ALS. It began with breathing trouble back in May of 08. He was treated repeatedly for respiratory infections. He was sent into respiratory failure by a docotor who sedated him in December. At the time time he had no twitching of his mucles and we thought his fatigue was from being sick and not being active. His muscles did decrease in size. He was trached and was on and off the vent. During his stay in the hospital they were back and forth between MG and ALS. They treated him with mestinon and petnizone. Finally they tried an IVIG treatment. His lung function and overall fealing did improve alot. He had 2 EMG's and they finally conclued that he had ALS. He still talks well and still eating whatever he wants. He is limited in his activites because of his breathing. I can't seem to shake the fealing that ALS is not the right answer. Does anyone have any ideas?