Mdrown91
New member
- Joined
- Dec 30, 2021
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Huntington Beach
Hi everyone, and sorry to all who are here. I have been having very suspicious symptoms for about 6 weeks now. They all started right after I gave birth to my first daughter on November 19th. I had some post labor complications which led me to be hospitalized twice during the first week of her being here. I had extremely high blood pressure the first time, and the second time I had extremely high blood pressure as well but also my legs had started twitching. When I went to the hospital they checked my reflexes and I was hyperreflexive.
Since that day, my muscles have been twitching nonstop, it is constant. It started out only in my legs, but now it happens in my arms and even face as well. If I sit and put my legs in a certain position they shake on their own (clonus?) My right leg feels weak and I can see a visible difference in my calf sizes of left versus right. Also, I am having to clear my throat/cough after eating almost every meal… I don’t know if this is “bulbar” symptoms in addition to limb symptoms now.
I truly believe based on my symptoms that this is ALS. I am waiting to get a work up from a neurologist because I applied for life insurance and critical illness insurance and don’t want any medical records to show this before I am approved. Although I did have a scheduled phone visit requesting a neurology referral before I had applied for the life insurance, but didn’t end up doing the phone visit and told the doctor I would reschedule (I realized I didn’t want anything to be recorded) yet the doctor still wrote in my notes what the visit was regarding so it is in my record! I’m so worried that life insurance will see that visit and I won’t get approved or there will be a discrepancy because they will see I had symptoms of this before already having the life insurance.
Anyways, I have already accepted that if I do have ALS I just have to deal with it, because there is nothing else I can do. I have tried confiding in my husband but he doesn’t understand the extent or severity of the situation… that he would have to take care of me 24/7 as this progresses (along with taking care of our daughter) and this makes me so sad. We have been such an active couple, and putting him through this will break my heart. He is such a wonderful man but I don’t know how he would deal with this.
Anyways, sorry for the ramble, and not sure I even have a question to go along with this. I just really needed to vent because I don’t have anyone to talk to about this really other than my sister and she lives 4 hours away. (I don’t even bring this up to my husband often, he tells me I need to get the work up and we will go from there.) I will make the appointment once the life insurance situation is figured out.
Since that day, my muscles have been twitching nonstop, it is constant. It started out only in my legs, but now it happens in my arms and even face as well. If I sit and put my legs in a certain position they shake on their own (clonus?) My right leg feels weak and I can see a visible difference in my calf sizes of left versus right. Also, I am having to clear my throat/cough after eating almost every meal… I don’t know if this is “bulbar” symptoms in addition to limb symptoms now.
I truly believe based on my symptoms that this is ALS. I am waiting to get a work up from a neurologist because I applied for life insurance and critical illness insurance and don’t want any medical records to show this before I am approved. Although I did have a scheduled phone visit requesting a neurology referral before I had applied for the life insurance, but didn’t end up doing the phone visit and told the doctor I would reschedule (I realized I didn’t want anything to be recorded) yet the doctor still wrote in my notes what the visit was regarding so it is in my record! I’m so worried that life insurance will see that visit and I won’t get approved or there will be a discrepancy because they will see I had symptoms of this before already having the life insurance.
Anyways, I have already accepted that if I do have ALS I just have to deal with it, because there is nothing else I can do. I have tried confiding in my husband but he doesn’t understand the extent or severity of the situation… that he would have to take care of me 24/7 as this progresses (along with taking care of our daughter) and this makes me so sad. We have been such an active couple, and putting him through this will break my heart. He is such a wonderful man but I don’t know how he would deal with this.
Anyways, sorry for the ramble, and not sure I even have a question to go along with this. I just really needed to vent because I don’t have anyone to talk to about this really other than my sister and she lives 4 hours away. (I don’t even bring this up to my husband often, he tells me I need to get the work up and we will go from there.) I will make the appointment once the life insurance situation is figured out.
Last edited by a moderator: