westjlittle
Active member
- Joined
- Dec 12, 2006
- Messages
- 57
- Reason
- PALS
- Diagnosis
- October 2006
- Country
- US
- State
- CO
- City
- Denver
To All:
I was in a local ALS support group meeting and we were brainstorming things to do to cure ALS. This was a offshoot of a discussion we had on the MDA Gift of Time event held here in Denver. Which BTW, was a quite a success. 650 people attending the fundraiser for Augie's quest. But I digress...
One thing we discussed was the need for an ‘ALS Survey.’
The survey’s purpose would be to identify common traits, behaviors, medications (etc.) of ALS patients who live a long time. The idea would be to see if there is a common characteristic (correlation) between patient behaviors and living a long time with ALS.
Has anyone ever heard of such a thing being done?
Jim West
Aka westjlittle
I was in a local ALS support group meeting and we were brainstorming things to do to cure ALS. This was a offshoot of a discussion we had on the MDA Gift of Time event held here in Denver. Which BTW, was a quite a success. 650 people attending the fundraiser for Augie's quest. But I digress...
One thing we discussed was the need for an ‘ALS Survey.’
The survey’s purpose would be to identify common traits, behaviors, medications (etc.) of ALS patients who live a long time. The idea would be to see if there is a common characteristic (correlation) between patient behaviors and living a long time with ALS.
Has anyone ever heard of such a thing being done?
Jim West
Aka westjlittle