ALS Support Project

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DavidM

New member
Joined
Mar 15, 2016
Messages
0
Reason
Lost a loved one
Country
US
State
Colorado
Hello everyone,

My dear aunt passed away in 2015, two years after being diagnosed with ALS. Her challenges were great, yet she somehow approached the inevitable with love and grace. She was and continues to be an inspiration to our entire family.

As a tribute, my dad and I are developing a website with the goal of improving support for people with ALS, their caregivers, and family members. Even as a well-organized family, we stumbled through each stage of the process. To the extent possible, we would like to improve future experiences for those affected by ALS.

For the next month, we are gathering feedback from PALS, CALS, and anyone else who has experience with ALS. We are currently scheduling 30 to 45-minute phone calls. We can also Skype or email.

If you would like to share your thoughts, please email me a <email address removed by moderator> or contact me through the forum.

Thank you,

David
 
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Atsugi

Legendary member
Joined
Jan 11, 2011
Messages
5,179
Reason
Lost a loved one
Diagnosis
12/2010
Country
US
State
Florida
Since this involves CALS, PALS and others with experience, I moved it from CALS to OTHER.
 
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