ALS specialist hiding my thoracic emg?....???? Is it possible???

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NINA197711

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I have seen ALS specialist again.after last emg in Sept. did my limb and Thoracic musle emg but in report is only limb results. When I asked about thoracic test result he said he does not remember if he did it, so my husband was there as well while test and he does remember well because it was painful more than other parts, so I even told him it was painful during test and Doc. Answered me , “sorry its painful spot I know.”.now he is saying he does not have it . Is this normal???? What to think..(( thanks any idea is helpful!
 
You claimed on another forum you had denervation in the thoracic area? Now there are no results you say

however, to take your question at face value doctors are human and make mistakes. However if he doesn’t remember doing the emg in that area it would only happen if he didn’t find anything worrisome.

no doctors don’t hide results intentionally They report what they find but I can see them forgetting to document a normal result.
 
Thanks Nicki for answer. Hope all is well . I had emg with him in march,he did emg on leg and thoracic musle,also I had Mri of brain that showed gliosis. I saw him again in September and asked about mri .That time he told me gliosis is because of atherosclerosis and high blood pressure. I never had HBP is 110/75 allways. Also I showed him my gastrocs that are flat, I was ballerina for 24 years with huge strong muscles, allways in shape with bulk. He answered” may be its skin issue” what?... skin issue? My skin turned brownish after I started muscle wasting and it was so obvious on muscle areas that NYU took biopsy it was so brown tan that they was thinking its T cell lymphoma. But came back as just eczema, so no T cell . They did it twice.) I had emg with regular neuro and it showed insertion activity in paraspinals now both sides left and right and abcent F waves in legs. Also I am slowing my speech and cant breath while walking. I sent fax to him and emaild my new symptoms I got call to see him again. So I did. I took out report from his emg and was looking for findings on thoracic muscle and its not there. So I mentioned that to him last week visit and he told me he does not remember doing it. Also he examened me walk push squeez and on timer let me say words on D.. i only said 3 words((( cause my speech is slow and weird. He said :” you are still strong” like before. i dont know what to think anymore.. why I am “”still “”strong, why he keeps seeing me if I am not an ALS patient. Why I am not cleared and not told I dont have to see him anymore good luck and so on... and he send me to his pulmonologist for some test. Its on 26th this month. All his answers are strange to me. My Mom was Doctor my Grandpa was Doctor as well so I know how meds are and to not put emg reading in chart done by verry known als specialist thats weird. Thanks a lot. ( we moved to other house and I just found last week emg reading from last year of him before going to see him again, thats why I did not know if thoracic reading was not there, not even assumed that before did not paid attention.)
 
Oh sorry, and on other thread I was aking beCause in case I had denervation on that muscle if it would be enough or not for diagnose, because as I read from my als slecialists simplsiums he is saying that if limbs dont show any enough sign emg in thoratic area is early finding in als so thats what he did on me as I understand now. May be he knows but its not enough to make diagnose thats what I think. Thanks again.
 
I am sorry if I buthered you but its strange that lots of threads I saw here with people afraid about emgs and they had answers from you that psw fibs and paraspinals are red flag in emg so was my emg but you kicked me out. I dont know why you hate me but I am scared human bBeing too as others here who is sharing things to have advise.you allways answer them and giving hope and tips. I am also one of them. Not better and not less than anyone. And I am yes scared because still am seeing als Doc and was not told to not to see him anymore and just see regular neuro. You allways help people here but with me you are allways angry. And as far I know, one can be still strong ,have no lots of denervation can walk talk and have respiratory onset and stay undiagnosed because of not having criteria for diagnoses. But they have ALS. So may be I am the one?.. everything is possible and my psw fibs and parasp. Ins. Activity emg from regular neuro said rediculophaty and when you saw my emg here you said no als its says rad and you closed my thread but als Doc. Said after his emg I Do NOt have radiculophaty. So thats my big concern. What are my fibs and psw and all this ???? Thanks a lot anyways just I dont know why you are this way to me. Sorry I want post anymore unless I have any diagnoses. Thank you.I am sorry again.
 
Hi,

Nikki is a busy moderator and has ALS. She is from a family and has lost many relatives to ALS.

The reason your thread was closed is because we can no longer help you get to a diagnosis and the moderators are worn thin dealing with dying people and dying themselves.

You have been encouraged to work with your doctors. We cannot make a diagnosis online. We are all exhausted, trying to do the best we can.

When I was going through the diagnostic process, I always got copies of my test results and always asked each doctor "what was on the table?" What could it be? What has been ruled out. It is your right to get copies of all your medical records and that is what you should be doing.

I don't know what more we can do to help you except provide encouragement and support if you are diagnosed with a motor neuron disease.

Please understand this. It is your doctors who should be held accountable for your lack of information and evidence, not strangers on a discussion board.

Thank you for understanding.
 
Thanks a lot! Sorry I bothered!🙏
 
Suggestion.

Nina, you wrote....
" Sorry I want post anymore unless I have any diagnoses."

We're sure you meant "won't".

If you do have any diagnosis in the future which may give us any consideration
please break your response into paragraphs. It is difficult for us to read a post
that it is a brick of text.

Key word.... diagnosis.

Hope all goes well for you.
 
Yes sorry my English is not good enough, Its my 5th language.
Thanks a lot!
 
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