Chrismarie
Member
- Joined
- May 1, 2017
- Messages
- 17
- Reason
- Loved one DX
- Diagnosis
- 04/2017
- Country
- US
- State
- MA
- City
- Worcester
My husband has been having increasing breathing problems and weakening starting a year ago. Any exertion wears him out. After many tests for many issues, nothing has been found. However, 2 EMGs found issues in arm and leg. They say they can't diagnose als without three markers. Maybe it will worsen and become diagnosed. Frustration, since his breathing is his major issue. No stiffness, falling, swallowing issues, and only minor twitches. His breathing was so bad his sleep test revealed over 100 breathing stops per hour. He has good oxygen levels but his co2 had been high. Thankfully a bipap has eliminated that problem and he now sleeps very well. It seems doctors can't diagnose it even though it is his worst symptom. Other diagnosis have been pretty much ruled out. He has started IV immunotherapy. We are hoping!!! Any one have current experience with similar respiratory onset? Thanks.