constructionduck
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This is from the ALSTDI site...posted today.
Seminar Will Bring ALS Researchers to Patient Groups
The Leading ALS Lab Presents on Therapy Development Strategy
The ALS Therapy Development Institute (ALS TDI) has announced the 2009 launch of its popular ALS Research 101 series. The two-hour, interactive seminar is designed to inform and update patients, their families and local communities on worldwide efforts to discover and develop effective treatments for amyotrophic lateral sclerosis (ALS, Lou Gehrig’s disease). People diagnosed with this fatal disease typically succumb within three years of initial symptoms because there are no effective therapeutics to slow or stop the relentless progression. ALS TDI will offer the free seminars in a dozen cities and towns across the United States this year.
“Every day, ALS patients are bombarded with new reports and claims of breakthroughs. We aim to provide patients and their families with the tools to navigate through endless streams of information and to use that knowledge in a positive way. As researchers, we have a responsibility to help make today’s scientific research approachable; conveying, for example, why therapeutic development has been challenging and what exciting prospects exist today,” said John McCarty, Ph.D., an experienced biology researcher who serves as Director of Therapeutic Investigations at ALS TDI.
Dr. McCarty will be joined at each event by Mary Beth Geise, R.N., a nurse with more than 30 years experience working with ALS patients and their families. It is the team’s objective to provide information on the latest research, address ‘hot topics’, and lead a discussion on quality of life issues. The speakers will also describe the impact a three-year, $18 million funding and scientific collaboration between ALS TDI and the Muscular Dystrophy Association’s Augie’s Quest initiative has had on the pace of research, as well as the recently announced 4#9830;ALS Awareness charitable campaign launched in partnership with Major League Baseball.
ALS TDI will kick off the series with an ALS Research 101 on March 28 in Orange County, California followed by stops in Salt Lake City, Utah on April 4, and Iowa City, Iowa on April 7. The Institute is also planning events in Detroit, Michigan and Seattle, Washington during the month of April; New Orleans, Louisiana in May; and Nashville, Tennessee and Denver, Colorado in June, with dates to be announced online soon. The Institute is also confirming locations for events in Green Bay, Wisconsin; Washington, D.C.; San Jose, California; New York City, New York and Boston, Massachusetts, before the end of the year. Registration is free but participants are encouraged to sign up early. Exact dates, times and locations will be announced locally, as well as online at http://www.als101.org, as they are confirmed.
For more information on the ALS Research 101 seminar series, please contact Jessica Sullivan at ALS TDI at (617) 441-7238 or via email at [email protected]. To be notified of changes to the tour, ALS community members are encouraged to sign-up for the ALS TDI monthly e-update newsletter at http://www.als.net.
Robert A. Goldstein
Director of Communications
ALS Therapy Development Institute
Seminar Will Bring ALS Researchers to Patient Groups
The Leading ALS Lab Presents on Therapy Development Strategy
The ALS Therapy Development Institute (ALS TDI) has announced the 2009 launch of its popular ALS Research 101 series. The two-hour, interactive seminar is designed to inform and update patients, their families and local communities on worldwide efforts to discover and develop effective treatments for amyotrophic lateral sclerosis (ALS, Lou Gehrig’s disease). People diagnosed with this fatal disease typically succumb within three years of initial symptoms because there are no effective therapeutics to slow or stop the relentless progression. ALS TDI will offer the free seminars in a dozen cities and towns across the United States this year.
“Every day, ALS patients are bombarded with new reports and claims of breakthroughs. We aim to provide patients and their families with the tools to navigate through endless streams of information and to use that knowledge in a positive way. As researchers, we have a responsibility to help make today’s scientific research approachable; conveying, for example, why therapeutic development has been challenging and what exciting prospects exist today,” said John McCarty, Ph.D., an experienced biology researcher who serves as Director of Therapeutic Investigations at ALS TDI.
Dr. McCarty will be joined at each event by Mary Beth Geise, R.N., a nurse with more than 30 years experience working with ALS patients and their families. It is the team’s objective to provide information on the latest research, address ‘hot topics’, and lead a discussion on quality of life issues. The speakers will also describe the impact a three-year, $18 million funding and scientific collaboration between ALS TDI and the Muscular Dystrophy Association’s Augie’s Quest initiative has had on the pace of research, as well as the recently announced 4#9830;ALS Awareness charitable campaign launched in partnership with Major League Baseball.
ALS TDI will kick off the series with an ALS Research 101 on March 28 in Orange County, California followed by stops in Salt Lake City, Utah on April 4, and Iowa City, Iowa on April 7. The Institute is also planning events in Detroit, Michigan and Seattle, Washington during the month of April; New Orleans, Louisiana in May; and Nashville, Tennessee and Denver, Colorado in June, with dates to be announced online soon. The Institute is also confirming locations for events in Green Bay, Wisconsin; Washington, D.C.; San Jose, California; New York City, New York and Boston, Massachusetts, before the end of the year. Registration is free but participants are encouraged to sign up early. Exact dates, times and locations will be announced locally, as well as online at http://www.als101.org, as they are confirmed.
For more information on the ALS Research 101 seminar series, please contact Jessica Sullivan at ALS TDI at (617) 441-7238 or via email at [email protected]. To be notified of changes to the tour, ALS community members are encouraged to sign-up for the ALS TDI monthly e-update newsletter at http://www.als.net.
Robert A. Goldstein
Director of Communications
ALS Therapy Development Institute