ALS registry

[mrd1956]

Hello: this may be a no-brainer but I wanted to ask anyway. Is it safe to say that most of you would advise joining the ALS registry if indeed you have been diagnosed? Or does it pigeonhole you and possibly disqualify you for later trials that may arise? Thanks very much

 

[MaxEidswick]

>Is it safe to say that most of you would advise joining the ALS registry if indeed you have been diagnosed?

imo yes

 

[krnNdug]

The registry doesn't disqualify you at all. It is a repository and our ALSA people say it is the largest medical repository in the world. Every bit of information the researchers can get is helpful.