I'm beginning to think ALS is really not all that rare and would like to know what is causing the numbers to climb. My husband has been given a diagnosis of progressive muscular atrophy by one doctor at a university hospital, but his own doctor has not yet given a firm diagnosis (both ALS specialists). My sister's husband is in his fifth year with ALS. Now we have heard from my cousin that his 37 year old son has a possible ALS diagnosis and has been sent to an ALS clinic by his neuro. That is 3 people in one family, all NOT related by blood. On this forum alone, there are 3 people living in a 15 mile proximity. Does anyone agree with me about a higher incidence than reported?