Hi this is the very first post for me and it's a reply to the "ALS Patient becoming difficult". I hope I'm doing this correctly as it seems I'm continuing on an existing post. Regardless when I read the post I was compelled to reply. Being the caregiver for my husband who has ALS I can (somewhat) understand the author of the initial "ALS Patient becoming difficult" comment about everyone needing to continue to work as I, too, work because financially I cannot afford to not work. However, I am blessed to have the ability to work from home (when I don't have to travel) and care for my husband as well. Anyway, the point to my post is what this preceding post states which I agree with and would like to add to. My additional comment is simply that your SIL is still very much cognizant of what is going on. The mind is not affected. She/He is a prisoner in their own body...can anyone without ALS even begin to fathom what it is they go through day in day out. Whilst, I live with ALS as a caregiver I honestly cannot begin to imagine what my husband must feel as he longs to move on his own. Please, please find a way to keep her involved there are so very many resources. The National or your local ALS Association is a great place to start. God bless.
