Delacroix11
New member
- Joined
- Jan 8, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- NO
- State
- OS
- City
- Oslo
Good morning all,
Note that I have read the thread pinned on this part of the forum.
I am a young man of 26, in good health so far.
But now for more than eight months everything has deteriorated.
I have multiplied the examinations, whether they are radiological or otherwise, and I am not getting any response to my symptoms.
That I have :
- Pain in the buttocks alternating right and left, feeling that my legs are made of wood, feeling of having the right leg shorter than the left (which is not the case, demonstrated by EOS radiographic examination).
- Random muscle twitch, all over the body, especially in the lower limbs. They are sometimes so brutal that I jump.
- Sensation of tingling, running, tingling on both feet and down the legs and thighs.
What I did:
- MRI of the entire spine: Nothing.
- MRI of the pelvis and hips: Nothing, nothing in favor of a myopathy.
- Blood tests including lupus, systemic disease: Nothing except an increase in my CK (250) which worries me a lot (I read that it was a sign of muscle pain).
- X-ray: Nothing, no herniated discs or others, no disorders of the skeleton.
And finally a single electromyogram which turned out to be unremarkable but which I particularly doubt today. OK, the physical examination, if I had a disease like ALS, should be of concern. He is not. But can we 100% conclude that a normal EMG indicates the absence of a disease of the motor neurons? I have read edifying testimonials on this subject, with in particular the sometimes presence of sensitive signs ... What I know is that my legs no longer have the same endurance as before, walking becomes difficult and I have wrong. The fasciculations are also multiplying more and more.
J'ai des réflexes vifs (deux jambes) ; pas de signe de Hoffman, pas de signe de Babinski
What do you think ? The increase in CK, intolerance to exercise, ect should they not lead me to investigate further?
Take care and thank you for any answers you may have.
Greg
I have sharp reflexes (two legs); no sign of Hoffman, no sign of Babinski
sorry I marked this sentence in French in my first post (I come from Quebec) and I got confused ...
Note that I have read the thread pinned on this part of the forum.
I am a young man of 26, in good health so far.
But now for more than eight months everything has deteriorated.
I have multiplied the examinations, whether they are radiological or otherwise, and I am not getting any response to my symptoms.
That I have :
- Pain in the buttocks alternating right and left, feeling that my legs are made of wood, feeling of having the right leg shorter than the left (which is not the case, demonstrated by EOS radiographic examination).
- Random muscle twitch, all over the body, especially in the lower limbs. They are sometimes so brutal that I jump.
- Sensation of tingling, running, tingling on both feet and down the legs and thighs.
What I did:
- MRI of the entire spine: Nothing.
- MRI of the pelvis and hips: Nothing, nothing in favor of a myopathy.
- Blood tests including lupus, systemic disease: Nothing except an increase in my CK (250) which worries me a lot (I read that it was a sign of muscle pain).
- X-ray: Nothing, no herniated discs or others, no disorders of the skeleton.
And finally a single electromyogram which turned out to be unremarkable but which I particularly doubt today. OK, the physical examination, if I had a disease like ALS, should be of concern. He is not. But can we 100% conclude that a normal EMG indicates the absence of a disease of the motor neurons? I have read edifying testimonials on this subject, with in particular the sometimes presence of sensitive signs ... What I know is that my legs no longer have the same endurance as before, walking becomes difficult and I have wrong. The fasciculations are also multiplying more and more.
J'ai des réflexes vifs (deux jambes) ; pas de signe de Hoffman, pas de signe de Babinski
What do you think ? The increase in CK, intolerance to exercise, ect should they not lead me to investigate further?
Take care and thank you for any answers you may have.
Greg
I have sharp reflexes (two legs); no sign of Hoffman, no sign of Babinski
sorry I marked this sentence in French in my first post (I come from Quebec) and I got confused ...