lieselotte3
New member
- Joined
- May 16, 2005
- Messages
- 8
Hello
Iwas diagnosed with ALs at the Mayo Clinik and given the usual18 month to 3 years to live what a schock that was. I thought abad back was my Problem do to the Pain I had in my lower back. I am seeing a nother Neurologist now and he tells me thath i dont have Als it is Lumbarsarial Plexopathy speling? and I am being treated once a Week with Solumethrol100Iv and IVIG 900 I have had 8 Treatments now and my Legs still feel very weak need a Walker now to get around the House. Has anybody ever heard of this Disease and what is the Prognosesfor Recovery. Iam vary scaredand confused about it all
Thank you
Lieselotte
Iwas diagnosed with ALs at the Mayo Clinik and given the usual18 month to 3 years to live what a schock that was. I thought abad back was my Problem do to the Pain I had in my lower back. I am seeing a nother Neurologist now and he tells me thath i dont have Als it is Lumbarsarial Plexopathy speling? and I am being treated once a Week with Solumethrol100Iv and IVIG 900 I have had 8 Treatments now and my Legs still feel very weak need a Walker now to get around the House. Has anybody ever heard of this Disease and what is the Prognosesfor Recovery. Iam vary scaredand confused about it all
Thank you
Lieselotte