Katmccoy85
Member
- Joined
- May 14, 2019
- Messages
- 11
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- olympia
Hello my name is Katrina I am a 34 year old mother of three and soon to be grandma..
first off I’ll start by saying I have had anxiety my whole life nothing to seriously crazy ... I have had breathing issues since I was a small child although I don’t use an inhaler often..
my problems started about 6 months ago I should also mention I am a former smoker but only smoked for about 7 years total off and on.. it all started with increased difficulty breathing which all my long xrays and even a pulmonary test was normal. Then I bagan having difficultly swallowing solids only and that is still accruing to this day liquids no problems at all.
Then I got the biggest scare and I will admit I am terrified we went on a camping trip and I got cold so I slept in my truck in a crazy position I am sure .. two days upon returning home my right leg became very weak and then my stupid self googled it and found als now I don’t know if it’s my mind or what I have no idea but now for two weeks I get these painless twitches from right above my knee all the way down to my calf they happen on the inside and the outside and my leg feels weak as well as muscles burning sometimes like I went and did a crazy work out which I did not.. then about a week ago I started getting twitches everywhere just not as much as in my right leg .. my arms feel heavy and I get the burning muscle pain. I am honestly terrified..
I have an appointment for another pulmonary work up on Thursday as well as a sleep study and a neuro appt on the 6th If June .. I saw the chiropractor today as well .. besides the swallowing all the body symptoms started happening two weeks ago is it possible for als to progress that fast ..
also had a clean mri .. my blood work was normal except for a slightly elevated inflammation in my body that is non specific. I will also state that I am 5 8 and over weight I am 240 pounds but prior to now I was 300. I have Avery large chest and would like to get a reduction but I won’t until I know what is going going on with me. Also I lost my mother in law in November to a brain aneurism and since then I don’t get drunk but probably have had 2 beers a day on most days.. I also have mild dull lower back pain but honestly what is freaking me out is the twitching in one leg for weeks and the weakness I have not noticed a difference in muscle bulk or size .. any insight would be helpful I am truly honestly terrified
first off I’ll start by saying I have had anxiety my whole life nothing to seriously crazy ... I have had breathing issues since I was a small child although I don’t use an inhaler often..
my problems started about 6 months ago I should also mention I am a former smoker but only smoked for about 7 years total off and on.. it all started with increased difficulty breathing which all my long xrays and even a pulmonary test was normal. Then I bagan having difficultly swallowing solids only and that is still accruing to this day liquids no problems at all.
Then I got the biggest scare and I will admit I am terrified we went on a camping trip and I got cold so I slept in my truck in a crazy position I am sure .. two days upon returning home my right leg became very weak and then my stupid self googled it and found als now I don’t know if it’s my mind or what I have no idea but now for two weeks I get these painless twitches from right above my knee all the way down to my calf they happen on the inside and the outside and my leg feels weak as well as muscles burning sometimes like I went and did a crazy work out which I did not.. then about a week ago I started getting twitches everywhere just not as much as in my right leg .. my arms feel heavy and I get the burning muscle pain. I am honestly terrified..
I have an appointment for another pulmonary work up on Thursday as well as a sleep study and a neuro appt on the 6th If June .. I saw the chiropractor today as well .. besides the swallowing all the body symptoms started happening two weeks ago is it possible for als to progress that fast ..
also had a clean mri .. my blood work was normal except for a slightly elevated inflammation in my body that is non specific. I will also state that I am 5 8 and over weight I am 240 pounds but prior to now I was 300. I have Avery large chest and would like to get a reduction but I won’t until I know what is going going on with me. Also I lost my mother in law in November to a brain aneurism and since then I don’t get drunk but probably have had 2 beers a day on most days.. I also have mild dull lower back pain but honestly what is freaking me out is the twitching in one leg for weeks and the weakness I have not noticed a difference in muscle bulk or size .. any insight would be helpful I am truly honestly terrified
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