applesos
Member
- Joined
- Aug 19, 2014
- Messages
- 21
- Reason
- Loved one DX
- Diagnosis
- 07/2014
- Country
- US
- State
- fl
- City
- Lady Lake
My husband was diagnosed with ALS by our neurologist on July 23, 2014. While I'm sure that he understands how serious this is, he doesn't talk about it with me or anyone. He wants me to tell friends and family that he has a neuro-muscular problem and is getting medication for it.
His diagnosis is devastating for me, too. I love him dearly; I know that we're in for a very difficult future and I really need the support of friends and family. I feel like I'm in a bubble; I'm dying on the inside but trying to act like all is well on the outside. It's killing me.
How do I get his permission to just tell people what's wrong? It's obvious that his shoulder muscles are gone and he can't use his left arm, so people are asking. A couple of times, I've just started crying. How can I explain to him that keeping this diagnosis secret is not healthy, especially for me. I'm sure our friends suspect the problem, but everyone is trying to tiptoe around the "elephant in the room".
His diagnosis is devastating for me, too. I love him dearly; I know that we're in for a very difficult future and I really need the support of friends and family. I feel like I'm in a bubble; I'm dying on the inside but trying to act like all is well on the outside. It's killing me.
How do I get his permission to just tell people what's wrong? It's obvious that his shoulder muscles are gone and he can't use his left arm, so people are asking. A couple of times, I've just started crying. How can I explain to him that keeping this diagnosis secret is not healthy, especially for me. I'm sure our friends suspect the problem, but everyone is trying to tiptoe around the "elephant in the room".