Seems, in short, the lack of support has played in this decision. Sigh... ALS is just something no one wants to know about, I guess. And perhaps the ALS community did not support him enough by providing videos and whatnot for fundraisers.
Folks, even though the ALSGA is seemingly gone, please keep in mind when your pALS passes - donate the equipment DIRECTLY to another pALS (that you know). If you were on Medicare and the equipment was essentially paid for by them, just pass it on and let pALS/cALS pay it forward. Please do not stick it in the loaner closet to gather dust! I've been waiting 2 weeks for a simple phone call to schedule p/u of items borrowed from the loaner closet that I know other pALS could use NOW! :-( How hard is it to make a phone call?
There has got to be a better way to get needed equipment to people...
Sorry, that was all over the place.