Amgalvin3
New member
- Joined
- May 9, 2012
- Messages
- 5
- Reason
- Lost a loved one
- Country
- Uni
- State
- MI
- City
- Livonia
I am SO nervous, my grandmother was diagnosed on Sept 10 2001 (an unhappy distraction to the next day, I must say) & was given 6-12 months. She died Sept 1st 2002. HER grandfather passed of als as best she could remember (the signs & symptoms) but after that she entered into orphanage so she's not sure about anyone else. Her mother died of hyperthyroidism, so it's not sufficient to guess if she'd have had it or not. My mother is in the process of being diagnosed, which brings me here.
I was the one who lived with my grandmother the last 7 months of her life & took care of her. I moved out just a few weeks before she passed, which I found out she decided to stop eating & drinking once my mom & I were not there, (I had just settled into a new home, & my parents were up north, because she knew we wouldn't just let her go like other family members would).
ANYWAYS, my grandmother got the tests done, & her final gift to our family was a fib--she said BOTH tests they ran to see if it was familial or not were 'inconclusive'
I know she did that to keep us from worry, as we now know it WAS, indeed, familial, & found out the notion that it could be 'inconclusive' isn't really too possible, she didn't LIE, she just didn't want to burden us with the truth.
Now, I have family members saying to NOT get tested, because insurance won't cover me later if I'm found to have the defective gene. That it would then be considered a 'pre exsisting condition'
Is that accurate? I REALLY want to know! Any help would be appreciated! Thanks! & bless you all who HAVE been diagnosed. I know first hand the picnic it's NOT. Stay strong! <3 :?:
I was the one who lived with my grandmother the last 7 months of her life & took care of her. I moved out just a few weeks before she passed, which I found out she decided to stop eating & drinking once my mom & I were not there, (I had just settled into a new home, & my parents were up north, because she knew we wouldn't just let her go like other family members would).
ANYWAYS, my grandmother got the tests done, & her final gift to our family was a fib--she said BOTH tests they ran to see if it was familial or not were 'inconclusive'
I know she did that to keep us from worry, as we now know it WAS, indeed, familial, & found out the notion that it could be 'inconclusive' isn't really too possible, she didn't LIE, she just didn't want to burden us with the truth.
Now, I have family members saying to NOT get tested, because insurance won't cover me later if I'm found to have the defective gene. That it would then be considered a 'pre exsisting condition'
Is that accurate? I REALLY want to know! Any help would be appreciated! Thanks! & bless you all who HAVE been diagnosed. I know first hand the picnic it's NOT. Stay strong! <3 :?: