ALS Functional Rating Scale predictor

[jojo]

Hey, gang. Joining in on the fun! 22/40 and 30/48 after 8.5 years symptom onset.

 

[Al]

Sure Richard NOW you try to cheer us up. I won't have time to do the test for a couple of days. I'm still studying.

 

[TBear]

It's March Break Al... do it after you get back from Disneyworld!

T.

 

[margeo55]

i first noticed signs of als in february 2004, and a real decline since march 2005, so far no respitory involvment

 

[Al]

Hi Marge. Being one that has has respiratory involvement I sort of envy you. What sort of decline have you noticed since Mar. 05? Oh and TBear I don't get to do Disney this year. I missed going south this year. Lee and I were watching some video of Florida from a few years ago swimming with the manatee's and going for 3 helicopter rides with this crazy Irishman Vietnam Vet over the swamps north of Tampa. The guy had us going along 20 feet over the grass and chasing airboats and doing a real beatup over the whole place probably illegal as hell but if you don't get caught or killed it is a great day. Best helicopter ride I ever got. Hint Hint. Another Hint. So When are you coming over to Burbank International? Better come soon while I can still do up my own seat belt. Also noticed your new position on the board. Congrats to you and Carol. Glad to have you aboard.
Al

 

[TBear]

... nothing like shooting up a few unsuspecting residents and bush dwellers to get your sphincter exercised. Don't worry... if I can get a machine, I should be able to drop it in your back yard... and you can get Lee to buckle you up... I won't look.
The professor and I are off to England this weekend... witha side trip to Barcelona!

Cheers

T.

 

[Al]

Good idea but the front yard might be better. Less trees and not terraced like the back. Have a good trip.
Al

 

[margeo55]

hi al
i have lost the use of my right arm, most of my left, i can still lift about 2 inches,can't carry anything though,my legs have been going, can't do stairs, if i sit too low i don't have the strength to get up, i have noticed some shortness of breath if i over do it, living one day at a time, adjusting to the obstacles in front of me.i guess having breathing problems are far worse than my little obstacles
marianne

 

[Al]

Hi Marianne. I'm not sure which is worse the hand loss or the crappy breathing. I guess they both have their pro's and cons but I guess it is easier to get help with your breathing than some of the hand tasks. A Bipap or a vent is available to help with breathing and then you can function on your own but you can't do a lot of things or need help with the hand tasks. Great fun this disease isn't it? Keep smiling.
Al

 

[margeo55]

hi al
we can smile, keeps everyone wondering what you are up to.
marianne