pmbenb83...
yes I think we all sit around and wonder if anything really is being done, and it seems to take so long for things to happen. I am sure more people on the forum know things in their local area. Like I KNOW that a new charity has been set up in london for research, I KNOW that a london hospital is doing a lot of research into stem cell treatment, and I KNOW that my neuro, at my mnd clinic in london is heavily into research, he has video conferencing monthly with all sorts of other doctors from who knows where, to share ideas on any research, and I KNOW that my neuro is planning a new trial in the UK for later in 2009...it is in addition to the UK lithium trial, but I dont know anything else. All these things ARE going on but have not reached the press yet, and I am sure there is tons of stuff going on all over the world which we dont know about. I only just found out about Project ALS, who are doing wonderfull things.
It is all this hope that helps me to keep going...something will happen soon for us, just hurry it up