ALS/EMG Follow up

[Cmishh]

Hello Again..

So I had additional follow up in April 2017 with neuromuscular specialist who performed another full work up including EMG and NCV. Was given confirm at that time that what ever is causing my symptoms, fasics in legs and arms and feet, pain in hips and arches, extreme stiffness and muscles that fatigue super easily with everyday activities, is not ALS. My question is in regards to timing of an EMG. If I have had these symptoms for what now is over 2 years and gotten clean reports from neuro doctors since the start of the symptoms then my focus should be elsewhere yes? In other words the emg can not be done too early or anything like that. Seem to think I have read it both ways. Anyway, I am just hoping for some feedback on that.. trying to re close a door I thought I had closed as to this ALS fear. Something is definitely amiss with me but to date I have not been able to find any answers with pcp, neuro, and endocrin and I continue to feel worse and worse. Any info as to the EMG question would be great. Thank you.

 

[Nikki J]

The people I know of who initially had a normal EMG were not told they were fine they had significant findings on their clinical exams that their neurologists told them were worrisome. Upper motor neuron findings, which are detected by the neurologist’s exam can precede lower motor neuron findings on EMG.

If your EMGs were fine and you were told no signs of ALs by your neurologist then yes it is time to seek other answers after 2 years. Good luck

 

[Cmishh]

Nikki..

Thank you for your quick reply, I appreciate it.

 

[affected]

I can't imagine that ALS could possibly be on the radar at all after this much time with no actual measurable signs. That's great news, thanks for updating

 

[Cmishh]

Thank you for taking time to reply to my concerns. Going to see a rheum next week so hoping to get some answers as to what is going on. Easy to fall back down the AlS rabbit hole when at least in my mind, my body feels weaker and doing daily activities without getting completely exhausted gets tougher and tougher. Again.. many thanks and have a nice day.