ALS Diagnosis

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Irish7

Member
Joined
Sep 14, 2006
Messages
10
Reason
Learn about ALS
Country
CA
State
Ontario
City
Windsor
HI there, I have not been here for a while. After all of the tests, for A.L.S. I was just informed yesterday by Dr. Michael Strong at the A.L.S. CLINIC in London,Ontario that i do not have this dreadful disease, but i still have a disease called spinalcerrebellar ataxia. It is a fatal disease as well. but life span for myself will be extended. But, my battle will continue as well as the others on this forum and others. Like i have said many other times on here, I was going to fight this horrible disease, well the language of my disease has changed but will still fight on. That inner strength will always be within me, as i hope will be with u. I wll always be thankful for the support and concerns of others on this forum as well as family and relatives, new friends online. As far as im concerned im still family on here and i will always keep in touch. There is always HOPE, and my fighting irish spirit, the fire in the belly, will always be there. As far as im concerned i am basically fighting the same fight, for my life.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hi Irish7 - A fatal disease is as bad no matter what they call it. I hope you find support for spinalcerrebellar ataxia but, speaking for myself (and I am not in charge around here) your thoughts and opinions will always be welcome on this board. Plesae keep in touch. CIndy
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Well Irish: speaking as someone who is in charge (in part) I would be glad to extend an invite for you to stay around and keep us informed about your condition. I haven't heard of your diagnosis before but your symptoms did sound like ALS or a variant before. What you find out and let us know may help someone else get a proper diagnosis. We all know how difficult that can be. There are are many diseases that mimic ALS. The more we know about them the better we are able to help manage our care. Plus as you said you are part of the family and that is important. AL.
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Irish -

The diagnosis may differ, but if the consequences and needs are so similar, we can still learn from and support each other.

Liz
 

Barbie4

Distinguished member
Joined
Mar 26, 2006
Messages
139
Country
CA
State
Ontario
City
Everett
Irish

Irish, My thoughts are with you. stay strong and keep fighting!

Barb
 
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